In this section you can read about the National Disability Insurance Scheme (NDIS). The NDIS is available to people aged under 65 years. It provides assistance to people living with a disability, including people living with motor neurone disease. The types of supports the NDIS may fund for participants include household assistance, aids and equipment, home modification, vehicle modification, coordination of support and other reasonable and necessary supports for daily living and participation.

When will the NDIS be available?

The NDIS is already available in Newcastle, Lake Macquarie and Maitland local government areas and in the ACT. From 1 July 2016, people living in the Hunter New England, Southern NSW, Central Coast, Northern Sydney, South Western Sydney, Western Sydney and Nepean Blue Mountains districts will be able to access the NDIS. From 1 July 2017, the NDIS will be in place across the rest of NSW.Once the NDIS gets to an area, people currently receiving supports through the NSW Government specialist disability services program will be moving to the NDIS first.

Guides and facts sheets about the NDIS roll-out in NSW

Guides and facts sheets about the National Disability Insurance Scheme (NDIS) roll-out in NSW, including community language translation versions, are now available from If you are aged under 65 years, and living with MND, these facts sheets will be of particular interest to you.

Does MND NSW provide advice and services for NDIS participants?

MND NSW has had nearly three years of experience with the NDIS in NSW and the ACT. We are able to offer advice and insight for people with MND getting started with the NDIS. Generally, we have found the NDIS has offered greater choice and higher levels of support and services for people with MND than have been available in the past.

However we have also found that, because the system is new, our members have benefited from speaking with their MND Advisor or the MND Info Line before their NDIS Plan is developed. Your MND Advisor can talk to you about services and supports often needed by people with MND.

Additionally, when your plan is developed, some services you currently receive or would like to receive from MND NSW must be included for you to receive those services. These include:

How do I access the NDIS?

To access the National Disability Insurance Scheme (NDIS) contact the NDIS contact centre ph. 1800 800 110 or visit

Government NDIS information sessions for participants

Run by the Australian Government, NDIS information sessions are designed to help people with a disability, as well as their families and carers, learn about the National Disability Insurance Scheme.

The sessions will cover topics such as:

  • What is the NDIS and how does it work?
  • Am I eligible for the NDIS?
  • What will happen if I am made eligible?
  • What kind of support can I access through the NDIS?

The information sessions are also a perfect opportunity to bring your questions along and have them answered by experienced NDIA staff members.

Information sessions are scheduled from time to time in various areas of NSW, ACT and the NT. You can find out when sessions are scheduled here: