Series of 8 two-page ‘Living Better for Longer' evidence-based facts sheets published 2012. Each fact sheet explores interventions that research has shown helps people live better for longer with motor neurone disease.

The health professionals you consult can give you better care and advice when they are knowledgeable about motor neurone disease and have a coordinated, multidisciplinary approach to your care. The multidisciplinary care fact sheet explains what multidisciplinary care is and how you can get it.

Riluzole is a medication that does not cure motor neurone disease but, for people with the most common forms of motor neurone disease, it probably prolongs median survival by two to three months (median is the mid-point - half those taking riluzole have survival prolonged by more than two to three months). People who start taking riluzole early in their disease progression are more likely to remain in the milder stages of the disease for longer than those not taking riluzole.

Motor neurone disease may cause the muscles involved in chewing and swallowing (the bulbar muscles) to weaken. A gastrostomy is a medical procedure during which a permanent tube is placed into the stomach through the abdominal wall. This tube can be used for liquid feed and fluids. Other symptoms of motor neurone disease, such as significant respiratory muscle weaknesses, can affect your recovery from the procedure. To find out about gastrostomy, read this fact sheet. 

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