Event Date 11 Apr 2019 (10:00 am - 3:00 pm)
Register by 5 Apr 2019 5:00 pm
Location Charlestown Bowling Club

Living Well with MND is an informative day for people living with motor neurone disease, their families and friends. It will provide a range of strategies to live well with MND and to maintain independence.

It will provide the opportunity for you to have your questions answered by a range of health professionals with expertise in MND and to meet others who understand what it is like to live with MND. There is no charge for you to attend this program but you will need to reserve your place.

RSVP by 5 April to This email address is being protected from spambots. You need JavaScript enabled to view it. or ph. 8877 0999 or Freecall 1800 777 175.

By the end of the day you will know more about:

  • motor neurone disease
  • improving the home environment
  • living independently at home
  • eating well with MND
  • equipment that can assist
  • communication and MND
  • strategies for symptom management
  • how to manage breathlessness and fatigue
  • finding services and support.

You will also have the opportunity to:

  • have your questions answered by a range of local health professionals with expertise in MND
  • meet others who understand what it is like to live with MND.

Guest Speakers

David Williams  - Director of Neurology, John Hunter Hospital
Amanda Masterton - Speech Pathologist, Newcastle Consultant Speech Pathologists
Susan Harrison - Dietitian, Hunter New England Health
Alicia Harris  -  Occupational Therapist, AJ Occupational Therapy Services
Lynette Campbell -  Palliative Care Nurse Practitioner, Calvary Mater Newcastle
Nick Yates -  Respiratory Failure Nurse Practitioner, John Hunter Hospital

Facilitators

Lauren Maxwell - MND Advisor, MND NSW
Eileen O’Loghlen - Team Leader and MND Advisor, MND NSW
Kristina Dodds - Education and Carer Support Coordinator, MND NSW

Program

9:45am Tea and coffee on arrival
10 Welcome and introduction to MND NSW 
10.15 Overview of MND and interventions that can help - David W
11 Maintaining communication, managing saliva and swallowing- Amanda M
11.30 Strategies for maintaining nutrition and MND - Susan H
12pm Lunch
12.45 Physical management of MND and maintaining independence - Alicia H
1.30 Making the most of every day - Lynette C
2 Respiratory matters  - Nick Y
2.30 Sharing tips for living well - it takes a team - Kristina and Lauren
3pm Close

 

View/download flier below

Event Date 11 Apr 2019 (10:00 am - 3:00 pm)
Register by 5 Apr 2019 5:00 pm
Location Charlestown Bowling Club