Two papers published in the journal Nature Genetics on 25 July provide yet more insight into genes predisposing people to MND. Three new genes known as C21orf2, MOBP and SCFD1 have been linked to MND, and a fourth gene, NEK1, has been confirmed as an MND susceptibility gene. These genes join the growing list of already identified genes linked to MND.
Each year MND NSW provides support, care and equipment to people with MND. MND NSW also provides research funding – nearly $600,000 over the past two years. This year we have included a special grant, the Dr Paul Brock MND NSW Research Grant. As a MND NSW Board member and Vice Patron, Paul’s tireless advocacy and drive helped inspire many researchers and will, one day lead to a world free from MND.
About 27 people living with MND, their family and friends attend the MND NSW Living Well with MND day at the Wyong Race Club on 21 July. Thank you to the wonderful speakers including the CORT team occupational therapist, speech pathologist, physiotherapist and dietitian and Dr Anna Shutz, a neurologist from Gosford Hospital and Dr Ranjeev Ratnavadivel, a respiratory physician also from Gosford Hospital. Thanks so much for giving us your time and sharing your knowledge and expertise about MND and how to live better for longer. It really was a very informative day. Thanks also to Interrelate on the Central Coast and to Jan who spoke about strengthening relationships and the challenges for not only the person living with MND but also for the person who travels the journey with them.
Central Coast Roller Derby United held the first of many fundraising events for the year for MND NSW at their July competition. A great night of Roller Derby action and fundraising. Thanks for your support ladies.
When shopping at Ritchies and by using a community benefit card/tag linked to Motor Neurone Disease NSW then Ritchies will donate money back to MND NSW. These cards/tags can be used at ANY Ritchies store throughout Vic, NSW and Qld by supporters and their families. If you would like to support MND NSW and you don’t already have a CB card/tag please collect one at the registers next time you shop at ANY Ritchies store to use every time you shop. All you do is nominate our Motor Neurone Disease NSW it’s that easy!