A big thank you to Sophy Townsend who for the second year organised Run MND in support of individuals and families living with MND, and  for research. A group of 86 runners and walkers took part following the Sutherland 2 Surf route ending at Dunningham Park in Cronulla. The event raised $10,000 to support families with much needed equipment and support, as well as $10,000 for research. Thank you to everyone who participated and donated to this wonderful event! 


Day 38 and the finish of Bob's ride. Bob formally finished at The Niche in the grounds of QE11 Hospital in Perth. This centre is part of the Neurological Support Centre and houses most of the organisations who are involved in providing services and support for those with neurological conditions, including MND. Congratulations Bob on another mammoth effort raising funds and awareness for MND and Huntington's.

Carers NSW invites you to complete a short online survey on your experience of being the sibling of a person with a disability, including your knowledge of existing supports, identifying any supports or information you would like to access, and what you would like service providers to know about your sibling experience. Click here to access the survey or if you have any questions, contact Lorraine Villaret, Carers NSW Project Officer on This email address is being protected from spambots. You need JavaScript enabled to view it.

Applications are now open for the MND Research Institute of Australia 2017 funding round for new research grants commencing in 2018. Closing date: 6 pm (AEST), Friday 25 August 2017.

Research grants offered for 2018 include 12-month grants-in-aid (up to $100,000), three-year post-doctoral fellowships, a PhD scholarship and PhD top-up grants. In addition, the Betty Laidlaw MND Research Prize aims to reward an outstanding mid-career researcher with a demonstrated background of excellence in neuroscience research. The Prize offers $250,000 for a 12 month project.

Funding decisions will be made by the MNDRIA Research Committee at a Grants Allocation Meeting on 9 November 2017.

A list of all grants available and detailed application guidelines are available online

If you’re living with a neurological condition and are experiencing bladder problems, you’re not alone – these issues are common among people living with conditions such as multiple sclerosis, Parkinson’s disease, MND and muscular dystrophy. MS are hosting this workshop which will be presented by continence experts including urologist Prof Richard Millard, physiotherapist Irmina Nahon and MS continence nurse Katherine Smith. For more information see http://www.mndnsw.asn.au/all-events/events-other-organisations/314-neurological-continence-seminar.html or contact MS Connect ph. 1800 042 138 or email This email address is being protected from spambots. You need JavaScript enabled to view it.

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