MND Aware is a free web-based awareness training module about motor neurone disease (MND) developed by the Motor Neurone Disease Association of NSW, with funding from NSW Government Family & Community Services. MND Aware provides New South Wales health and community care professionals with a basic understanding of the disease and the impact it has on an individual's life. The training can be accessed free on the web.

As MND is not a common disease, people working in health and disability may have little or no knowledge about this condition. MND is a progressive and ultimately fatal disease and there are about 1400 people in Australia living with MND at any given time.

The MND Aware training has been designed to give the learner an opportunity to gain an overview of MND so they are better prepared when they do meet someone with the disease. MND Aware also provides specific information about care, symptom management and wellbeing and support needs of a person with MND.

This easy to use self-paced training provides the learner with slide presentations and the option of listening to a presenter and a notes page to read the information themselves. Videos and graphics supplement the slide presentations. The MND Aware training is suitable for all types of learners.

The training has been specifically developed for health and community care professionals including

  • community, home care, disability and aged care workers
  • intake and referral staff
  • case managers
  • health, allied health and palliative care professionals
  • volunteers, chaplains and others who work with people living with MND

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The training has three component areas:

1. Introductory sessions

MND Aware Introductory sessions (sessions 1-9) are of interest to all people working with people living with MND. They include

  • What is MND
  • MNDcare Approach - a person-centred approach
  • The health and community care team
  • Case management and MND
  • The needs of people living with MND - an overview
  • Planning for future care needs - advance care planning
  • End of life care
  • MND Association
  • Training, support and resources for health and community care professionals

2. Symptom management sessions

MND Aware Symptom management sessions (sessions 10-19) provide a more detailed look at how MND symptoms are managed by the care team.

  • Breathing
  • Swallowing and nutrition
  • Saliva and mouth care
  • Gastrostomy (PEG and RIG)
  • Communication
  • Movement and joints
  • Cognition
  • Emotional lability
  • Bladder and bowel
  • Fatigue and insomnia

3. Wellbeing and support need sessions

MND Aware Wellbeing and support need sessions (sessions 20-26) provide a more detailed look at the wellbeing and support needs of the person living with MND and their carer, family and friends.

  • Information and planning
  • Daily living and mobility - aids and equipment
  • Daily living and mobility - accessing MND aids and equipment
  • Personal care and home care
  • Psychosocial and spiritual needs
  • Carer wellbeing and support
  • Children and families

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