About 10% of people diagnosed with MND have a ‘familial’ form of the condition; that is, there is or has been more than one affected person in a family. The remaining 90% of people with MND are the only affected person in their family and are said to have ‘sporadic’ MND. Most people with MND have the sporadic form and so it is not a genetic or inherited form of the condition and so will not be passed on in families.
Read more here: Does MND run in a family or have a genetic connection?
MND Genies
This is an online support network and Facebook group for people who have a motor neurone disease related genetic mutation, but do not have MND. MND Genies
