You are invited to participate in an ongoing research project that is looking for risk factors that might precipitate motor neurone disease (MND). An online anonymous questionnaire asks a series of questions about you that may give clues as to what factors trigger MND. Everyone is welcome to complete the questionnaire - people with the sporadic form of MND (that is, the type that does not affect other family members), people with familial MND, relatives and others without MND. Please note, if you have previously submitted a response to the ALS Quest questionnaire, there is no need to complete it again.
The questionnaire, designed by Dr Roger Pamphlett at the University of Sydney, and instructions for how to complete it can be found at www.alsquest.org.
This study has been approved by the Ethics Review Committee (RPAH Zone) of the Sydney Local Health District.