The first Deloitte Access Economics Report on the Economic analysis of motor neurone disease (MND) in Australia reveals that the total cost of MND in Australia was $2.37 billion in 2015, comprising $430.9 million in economic costs and $1.94 billion in burden of disease costs. The report, commissioned by MND Australia, was launched at Parliament House, Canberra on 24 February 2016.
It is the first Australian study of the economic impact of MND, a progressive neurological disease that kills two Australians every day, usually within 2.5 years following diagnosis. Full report: Economic analysis of MND in Australia. The report states that the total cost of MND in Australia was $2.37 billion in 2015, comprising $430.9 million in economic costs and $1.94 billion in burden of disease costs.
"The enormity of the cost is akin to the brutality of MND. People living with MND may rapidly develop physical disabilities often forcing them and their carer to withdraw from work prematurely. This loss of productivity places a great burden on families and the economy," says Ms Carol Birks, National Executive Director of MND Australia.
While government bears 68% of health system costs there is still a significant gap borne by individuals and other organisations.
MND NSW Board Member, Dr Kirsten Harley was diagnosed with MND three years ago:
"When you receive a diagnosis of MND, money is the last thing on your mind. But along with the relentless physical and emotional effects on yourself and loved ones are the financial costs: early retirement, medical appointments, hospitalisations, treatments, equipment, wheelchair transport, personal care ... There is support from the state MND associations and government, but it all adds up."
The national network of six state MND associations assist Australians living with MND to get the right care at the right time. Over 75% of Australians living with MND seek care, information and support from their state MND Association.
"The state MND associations currently do an excellent job of ameliorating the shortcomings of the care system and supporting people to remain at home. As we dawn on a new era of care in Australia, we appeal to the government to make MND a health priority and fast-track care and support services for people living with MND." says Ms Birks.
Read the full report here