You can participate in this international study aiming to find out if there is a relationship between levels of stigma and levels of psychological distress experienced by individuals with a diagnosis of MND. Researcher Natalie Leigh from Clinical Psychology programme at Lancaster University, Lancaster, United Kingdom, is seeking participants for her research. Anyone aged 18 or over who has a diagnosis of MND can complete an online survey regarding their experiences of stigma and well-being.
In this study, the term stigma means a feeling of shame about being different and feeling that you will be treated differently because of this, or actually being treated differently because of this difference.
If you decide you would like to take part, you would be asked to complete an online survey to assess levels of stigma, well-being, self-esteem, social support and symptom severity. It should take you about 15 to 20 minutes to complete and need not be completed at one sitting. Someone can help you complete it if you would like them to.
If you would like to take part in this research, please click the following link to access the online survey:
This study has Ethics Approval from Lancaster University Faculty of Health and Medicine Research Ethics Committee (FHMREC) Reference:FHMREC17027
For further information please contact the main researcher’s supervisors: