For the carer (usually a family member or friend) of a person with motor neurone disease.
This two-day residential carers workshop focuses on the physical and emotional aspects of caring for a person with motor neurone disease. This is a two-day residential workshop for a family member or friend who is caring for a person with motor neurone disease.
The workshop may be followed by telephone discussions of one hour duration, held during the weeks following the workshop. These will be arranged and paid for by MND NSW. Commitment to participate in all components of the program is essential.
It is difficult for motor neurone disease carers to take ‘time out' from caring. MND NSW can help you liaise with your local carers respite centre to get respite care (including overnight) in the home if necessary, so you can participate in the workshop.
During the workshop you will learn about:
- motor neurone disease
- services available to people with motor neurone disease and their carers
- physical aspects of caring
- tips and techniques for caring
- swallowing and communication
- respiratory support
- emotional aspects of caring
- stress management and self care
You will have the opportunity to:
- have your questions about motor neurone disease answered
- meet other people who know what it is like to be caring for a person with motor neurone disease.
There is no charge to attend this workshop but bookings are essential and places are limited.
Link and Learn is usually held once a year in either a metropolitan Sydney, regional or rural location of New South Wales or the Australian Capital Territory.
To find out when the next Link and Learn workshop will be held see the calendar.
If you would like to suggest a location for a future Link and Learn workshop, contact your regional advisor or the MND NSW Info Line.