MND Genies is a closed unlisted Facebook group for people, living in Australia or New Zealand, who have a motor neurone disease related genetic mutation, but do not have MND.

About 10% of people diagnosed with MND have a familial form of the disease. Of these, about one in five have a mutation on the SOD1 gene and about two in five have a mutation on the C9ORF72 gene. These mutated genes can be passed down through families and children can inherit the mutated gene.

The aim of MND Genies is to provide a space where people can connect and share their experience of having an MND related genetic mutation. MND NSW does not endorse comments or posts made by group participants. To join MND Genies or for more information about the group contact Kate Maguire MND NSW at This email address is being protected from spambots. You need JavaScript enabled to view it. or ph. 02 8877 0902.

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