MND Genies is an online support network and closed Facebook group for people who have a motor neurone disease related genetic mutation, but do not have MND.
About 10% of people diagnosed with MND have a familial form of the disease. Of these, about one in five have a mutation on the SOD1 gene and about two in five have a mutation on the C9ORF72 gene. These mutated genes can be passed down through families and children can inherit the mutated gene.
The aim of MND Genies is to provide a space where people can connect and share their experience of having an MND related genetic mutation.
MND NSW does not endorse comments or posts made by group participants.