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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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As carers we often find ourselves doing tasks that we never imagined we would be doing to support the people we love the most, especially with daily living activities. Safety is our focus and in the spirit of April Falls Month, we are sharing information about the resources and training available for carers to build your skills and confidence with manual handing.

The first quarter of 2025 has passed, and the MND NSW Info Line has responded to over 300 enquiries during this time. People have reached out with a variety of questions, and this month’s top five topics include: patient referrals, accessing equipment, physical activity, genetics and avoiding pressure sores.

Terminology and acronyms in the health and disability sectors can be confusing. An example of this is the difference between motor neurone disease (MND), amyotrophic lateral sclerosis (ALS) and Lou Gehrig’s Disease. In Australia we generally use the term motor neurone disease or MND, so what’s the difference between MND, ALS and Lou Gehrig’s Disease?

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