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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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The calibre of the researchers who presented at MND NSW Ask the Experts Monday 5 November 2018, was excellent. Dr Rebekah Ahmed, Consultant Neurologist, Senior Lecturer and Director of the Memory and Cognition Clinic at Royal Prince Alfred Hospital and the University of Sydney, provided a very interesting overview of MND.

MND Australia’s research arm – the MND Research Institute of Australia (MNDRIA) - has awarded almost $4 million for new research projects commencing in 2019. Following review of grant applications by the MNDRIA Research Committee, 28 new research projects across all Australian States will be supported in 2019 in addition to funds previously committed to support an innovative, national NHMRC partnership grant (2019 – 2023).

Whist watching the hundreds of walkers at the start of the Sydney Walk to d’Feet MND, I was reminded of a line from a beautiful poem shared with us from MND UK.   “Because of you, there is HOPE, a harbour of love, courage determination, defiance, generosity.......walking shoes purpose and drive.”

MND Genies is a closed unlisted Facebook group for people, living in Australia or New Zealand, who have a motor neurone disease related genetic mutation, but do not have MND.

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Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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