Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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In the past year we have worked hard to support our members in achieving key communications needs. We have helped them with the communications challenges presented by daily life. We have reorganised and augmented our team to facilitate the individualised pre-planning and third-party communications necessary to help members aged under 65 years make the most of their NDIS plans. We have continued to work on communicating our cause to the public in order to fund research that will lead to a cure. Read more about our work in the MND NSW Annual Review 2017.

MND NSW celebrated Carers Week 2017 with a morning tea held at our centre in Gladesville on 18 October. Former and current MND carers made the most of the opportunity to forge some new connections and to re-connect with old friends. Many thanks to Carers NSW for providing a grant towards the costs of this carer’s week event!

Congratulations to Patti Conway one of our valuable Hunter region volunteers. Patti was recognised as a FINALIST - NSW Volunteer of the Year 2017 at an award ceremony on Tuesday 12 September. This year there was a record number of nominations for the Volunteer of the Year Awards, with almost 110,000 volunteers recognised across the state in all categories. Thank you for all you do for MND NSW - we know you don’t do it for the recognition - but we appreciate your time speaking out and raising awareness and funds for MND NSW.

The Goulburn Toyota Gundaroo Music Festival is the vision of a very talented musician Scott Windsor who passed away from MND in April 2015. The following video is Scott's wife Sue talking about how the festival helps and what it means to her family. https://www.youtube.com/watch?v=-t0Rhwu5yYY . If you haven't attended a Gundaroo Music Festival don't miss this year's event on Saturday, 14 October 2017. Tickets are now on sale at http://bit.ly/2s24Bay.

Do you want to know what’s new in motor neurone disease research, current clinical trials and effective treatments for MND? Reserve your place at MND Connect, an interactive forum connecting people impacted by MND, with Australia's leading MND researchers. In 2017 this Forum will be held in New South Wales at the University of Sydney. People with a disability and their carers may reserve a disabled parking spot at the venue, or receive a wheelchair taxi voucher or subsidised travel from a regional area to attend this event. Find out more about MND Connect 2017 here.  

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About us

What is MND NSW and what do we do?

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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