MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
After heavy rain all night, we prepared ourselves for the worst, but Mother Nature was kind to us with the early morning dawning bright and dry. This was the fourth Walk to d’Feet MND held in the Illawarra and the Illawarra showed up in their hundreds, lots of smiling faces and panting puppies. Our Walk to d’Feet MND events attract some large family groups and the Illawarra Walk was no exception, with groups of 25 and 30 people there to show their support for people living with MND, or to remember a loved one who has died from MND. Thank you to everyone
In a paper published online on 22 February in the Scientific Journal Neurology, MND researchers announced results of study (45 controls and 54 people with MND) evaluating whether a urine test for the protein 75ECD (p75ECD) could be used for prognostic and disease progression application.
The researchers, including Dr Mary-Louise Rogers from Flinders University, South Australia, found that urinary p75ECD did change over time, increasing as disease progresses and motor function declines, even for people with slowly progressive disease.
You can read the full paper free online here http://dx.doi.org/10.1212/WNL.0000000000003741
Every Australian Counts team will be hitting the road from March – May presenting NDIS information forums in NSW regional areas where the NDIS will be rolling out from July. Every Australian Counts is the campaign that brought about the introduction of the National Disability Insurance Scheme and now they are focused on engaging and educating the disability sector and wider Australian community about the benefits of the NDIS and the options and possibilities that it brings. At their NDIS Information Forums in regional areas of NSW in March, April and May 2017 they'll be covering
The ATSA Independent Living Expo will have over 100 exhibitors displaying a wide range of products and services in assistive technology, mobility solutions, pressure care, employment support, accessible recreation/holiday ideas, modified motor vehicles and a lot more. ATSA Independent Living Expo is open to visitors of all ages, including those with a disability, seniors and their families, friends and carers. A key feature of the Expo is the free Conference Program. More info
MND NSW members, families and supporters in the ACT or visiting Canberra are invited to attend a morning tea event at Parliament House Canberra on Wednesday 22 March. On this day, the Neurological Alliance Australia (NAA) will be conducting a special briefing for the Parliamentary Friends Group meeting of the Members of the NAA.