This research update is produced by the MND Research Institute of Australia - the research arm of MND Australia. Read the latest MND research news.
MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
The Illawarra Health and Medical Research Institute (IHMRI), in association with the School of Arts, English and Media at the University of Wollongong, presents Magnified: A science art exhibition. This fundraising exhibition features 52 stunning images of the work of researchers and students at IHMRI, UOW and the Illawarra Shoalhaven Local Health District (ISLHD). Images in the exhibition will be on sale to the general public, with all proceeds going towards Motor Neurone Disease (MND) research at IHMRI, in honour of Associate Professor Justin Yerbury.
Thank you to all our volunteers - over 175 of you - who generously gave your time to raise money for MND NSW on Cornflower Blue Day, Friday 11 May and throughout MND Week. To date you have collected over $36,000. Thank you for being there for us, we hope you met some wonderful people and formed some great friendships as you volunteered. We have heard that many of our volunteers met members of the community who have been touched by MND who came forward to talk and share their story. Thank you for raising awareness, connecting people and starting discussions.
On Sunday 6 May, to coincide with the kick off of MND Week, 387 people (primarily residents of the Sutherland Shire, but coming as far afield as the Central Coast, Gundaroo and Tenterfield) ran or walked from Sutherland (5 km) or Miranda (10 km) to Cronulla to raise funds and awareness for motor neurone disease. Several families that have battled or who are battling MND were also in attendance, all local to the Sutherland Shire.
Today is the beginning of MND week 2018 and this year we are pleased to announce the launch of Make Aged Care Fair – a new campaign that calls on the Government to make sure people diagnosed with motor neurone disease when aged 65 or over have access to the right care, in the right place at the right time. We need your help to make sure our decision makers listen.
15 page A4 quick reference list with online links to information, services and resources that may be of interest to people living with MND in NSW, the ACT and NT.