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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Each year the first full week of May marks MND Week. From 7 to 13 May 2017 our focus is Life Measured in Moments #7DaysWithMND but we can’t do it without you. 

MND NSW assists people with MND live life to the fullest, not being dictated to by MND. Our equipment enables members to remain living at home, go on a holiday or attend a special event. We provide subsidies for members that reduce the ongoing cost of non-invasive ventilation so the task of breathing, that we all take for granted, is easier. We provide information for people newly diagnosed with MND when questions need to be answered. Our communication and computer access devices provide the means for people to stay connected when speech and arm movements are hard. MND NSW educational programs and support groups inform and link people with MND, their family and friends. We help make every moment count.    

Stay up to date with what is happening in MND Week by reading about the planned events here and by watching our Facebook page. And make sure you let us know of any events taking place in your area!

Ten national peak not-for-profit health organisations (making up the Neurological Alliance Australia (NAA)) are calling for the National Disability Insurance Scheme (NDIS) to transform the lives of over 850,000 Australians living with progressive neurological or neuromuscular conditions that have no known cause and no cure, outlined in a Joint Position Paper, People with progressive neurodegenerative diseases in the NDIS, launched 22 March 2017 at Parliament House Canberra.

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About us

What is MND NSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Support our work. Buy MND NSW merchandise here.

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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