MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Thank you to all our volunteers - over 175 of you - who generously gave your time to raise money for MND NSW on Cornflower Blue Day, Friday 11 May and throughout MND Week. To date you have collected over $36,000. Thank you for being there for us, we hope you met some wonderful people and formed some great friendships as you volunteered. We have heard that many of our volunteers met members of the community who have been touched by MND who came forward to talk and share their story. Thank you for raising awareness, connecting people and starting discussions.

On Sunday 6 May, to coincide with the kick off of MND Week, 387 people (primarily residents of the Sutherland Shire, but coming as far afield as the Central Coast, Gundaroo and Tenterfield) ran or walked from Sutherland (5 km) or Miranda (10 km) to Cronulla to raise funds and awareness for motor neurone disease. Several families that have battled or who are battling MND were also in attendance, all local to the Sutherland Shire.

Australia's MND March of Faces Banners are a photographic display of people with motor neurone disease. The MND NSW March of Faces banners are displayed at various MND awareness raising and remembrance events throughout the year. Our MND March of Faces Banner 20 was  displayed for the first time during MND Week 2018.

Today is the beginning of MND week 2018 and this year we are pleased to announce the launch of Make Aged Care Fair – a new campaign that calls on the Government to make sure people diagnosed with motor neurone disease when aged 65 or over have access to the right care, in the right place at the right time. We need your help to make sure our decision makers listen.

From the MND Research Blog: "Physical activity has always been at the forefront of factors associated with MND, but studies investigating its effect have often been conflicting. The reason why we might see contrasting results is often due to different cohorts and numbers of people included in the study, the method by which the data was collected, or the types of questions asked and the way they were presented. Increased number of studies on the same topic might then improve the way these are conducted in the future and provide more reliable conclusions. The most recent multi-centre study that included over 1,500 people with MND and nearly 3,000 control participants was conducted by the Euro-MOTOR consortium under the leadership of Prof Leonard van den Berg. Today (24 April),

15 page A4 quick reference list with online links to information, services and resources that may be of interest to people living with MND in NSW, the ACT and NT. 

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