What a lovely day in Forbes on Sunday 17 April for the Walk to d'Feet MND. Thank you to Pat Duncan and her side kick Marcia who did a great job again this year in organising a fantastic day. A huge thank you to Stewart and Rodney from Duncan Stockcrates who were the major sponsors for the second year running.
Each year the first full week of May, Sunday to Saturday marks MND Week. It is our chance to focus on awareness but we can’t do it without you. This year our focus will be on promoting the diagnosis of MND and providing information to GPs to help them seek an early diagnosis leading to better care and support. Our national social media campaign #7dayswithMND will shed light on people living with MND, their family, carers and health professionals and researchers.
2016 will see the start of safety and tolerability testing of combination anti-retroviral therapy in a phase 2 clinical trial called The Lighthouse Project. The overall aim of the project is to test the possibility that a virus may be a cause or trigger for motor neuron disease (MND).
The first clinical trial of copper-ATSM as a potential treatment option for MND will start in 2016. Importantly, copper-ATSM therapy was developed in Australia, the first-in-man clinical study is being performed in Australia, and the sponsor is an Australian company (CMD).
The Doll Collectors Club of NSW was formed in 1978 and each year members nominate a charity that the club will support. MND NSW was the chosen charity for 2015. Funds were raised at events throughout the year, including the 34th Liverpool Doll Fair held in July. This is the largest doll fair in Australia and includes hundreds of traders with dolls, bears, miniatures, toys, craft items, dolls clothes and accessories.