On 24 February, 2016 MND NSW Board member Kirsten Harley gave a speech at Parliament House, Canberra. This is a transcript of Kirsten's speech in which she talks about how MND has impacted her and her family's life.

I wish to acknowledge the traditional owners and custodians of the land on which we meet today and pay respect to their elders, past present and future.

Each of the 2094 Australians living with MND has a story about the personal impact of MND. I'm Kirsten and my story starts four years ago in 2012.

At the Old Town Open Gardens event in the UK, Caroline Day, artist raised over £1000 to be shared between Motor Neurone Disease Association NSW and several other recipients. Caroline thanks everyone who visited me, and sent a photo of herself with with celebrity Lord Joel Joffe buying one of her hydrangea greetings cards! Thank you Caroline.

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