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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT, the Gold Coast and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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The results are in and we are very excited to announce that over $68,500 has been raised at the Sydney Walk to d'Feet MND an amazing effort and a great way to finish off our Walks for the year. A special mention must go to "Team Kiz" who raised over $21,000 on their everyday hero page. For more photos and a video of the start visit our Facebook page  https://www.facebook.com/mndnsw. Thank you to everyone who supported this event. We look forward to seeing you again next year.

For over 35 years MND NSW has been and remains the only organisation supporting people with MND in NSW, providing equipment, support services, advocacy and education at no cost to the person with MND, their family and carers. All with only 15% recurrent government funding. MND NSW has also helped to provide over $25million in research to help find a cure. Until there is a cure there is care. We need your support to continue. Make your tax deductible donation online or phone 02 8877 0999.

We are really happy to see some changes to be piloted by the NDIS in the coming months. We have been advocating hard for these! The proposed changes include no more phone planning, planners who have better understanding of the different types of disabilities and recognition that some groups of people might need extra help navigating the NDIS including people with more complex needs. More info here https://www.disabilityloop.org.au/news/pathway-changes.html

Congratulations to Patti Conway one of our valuable Hunter region volunteers. Patti was recognised as a FINALIST - NSW Volunteer of the Year 2017 at an award ceremony on Tuesday 12 September. This year there was a record number of nominations for the Volunteer of the Year Awards, with almost 110,000 volunteers recognised across the state in all categories. Thank you for all you do for MND NSW - we know you don’t do it for the recognition - but we appreciate your time speaking out and raising awareness and funds for MND NSW.

The Goulburn Toyota Gundaroo Music Festival is the vision of a very talented musician Scott Windsor who passed away from MND in April 2015. The following video is Scott's wife Sue talking about how the festival helps and what it means to her family. https://www.youtube.com/watch?v=-t0Rhwu5yYY . If you haven't attended a Gundaroo Music Festival don't miss this year's event on Saturday, 14 October 2017. Tickets are now on sale at http://bit.ly/2s24Bay.

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