Introductory information about motor neurone disease.

2 page leaflet providing brief answers to questions people usually ask about motor neurone disease.

  • free online
  • hardcopy available - free for members and others

Translated information sheets are also available for download in the following languages: Arabic  Chinese  Croatian  Greek  Italian  Korean  Polish  Serbian  Spanish  Thai  Turkish  Vietnamese

(c) MND Australia published September 2018

 

Information pack of six booklets (of 8 to 20 pages each) for parents making the difficult journey with motor neurone disease. Talking with young people about MNDIncludes one booklet for parents with suggestions and tips, and five other booklets.

  • free online
  • hardcopy available - free for members, families and carers in NSW,ACT andNT.

Contents include:

(c) MND Vic and MND NSW published June 2008


Watch the Opening Address given by Dr Kirsten Harley and her daughter Kimi at the MND Australia Conference 2021. Dr Kirsten Harley is an Hon Lecturer in the Faculty of Medicine and Health at the University of Sydney and a board member of MND NSW. Kirsten was diagnosed with MND in 2013 and in this address she and her 15 year old daughter, Kimi Cabrera, share their strategies and stories for managing MND. Opening Address

You can also follow Kirsten's updates and insights on her personal blog page here: Kirsten Harley – Living with MND (home.blog)

2 page position statement that includes suggestons to assist you when researching MND on the internet. With the internet being as accessible and unregulated as it is, MND Associations often receive contact from people regarding treatments being offered both here and overseas that claim to treat or cure MND.

Often, these treatments are promoted and feature in online search results when people are searching for information about MND. It is very difficult for people living with MND and their families, who are hoping to find effective treatments or a cure, to sort the fact from fiction and the paid advertising from good quality health information.

  • free online
  • hardcopy available - free for members and others

(c) MND Australia published 2017

2 page information sheet and position statement that includes information about USA and Australian drug approval processes.  It can be difficult for people living with MND and their families to endure the wait for the development of an effective treatment and cure. MND Australia acknowledges the urgency to advance research to better understand MND and the desperate need for an effective treatment.

  • free online
  • hardcopy available - free for members and others

(c) MND Australia published February 2017

The calibre of the researchers who presented at MND NSW Ask the Experts Monday 5 November 2018, was excellent. Dr Rebekah Ahmed, Consultant Neurologist, Senior Lecturer and Director of the Memory and Cognition Clinic at Royal Prince Alfred Hospital and the University of Sydney, provided a very interesting overview of MND.

“Cleared up some doubts”, was one participant’s comment after the MND NSW Ask the Experts Forum at West Ryde on 22 August 2016. This Forum, held annually, aims to provide people with MND, their family and friends the opportunity to hear from experts in the fields of MND research and neurology and to ask questions.

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Couldn't get to Ask the Experts or the SIG workshop?

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