MND research

Are you thinking about participating in an MND related research project? There are some things you might like to think about before you start.

Based at Neuroscience Research Australia (NeuRA), there is a research clinic focusing on frontotemporal dementia and associated syndromes, including MND. Brain donation is when a person and their family decide to donate their brain for medical research following death. 

MiNDAUS is a partnership of Australian MND researchers, clinicians and organisations, which aims to develop a nationally co-ordinated and patient-centred approach to MND research, care and policy development.

A key component of the partnership is the MiNDAUS Patient Registry.

There is ongoing interest in alternative, off label and unproven treatments within the MND community globally, which is understandable when conventional medicine cannot provide effective therapies or a cure.

It can be difficult for people living with MND and their families to endure the wait for the development of an effective treatment and cure. MND Australia acknowledges the urgency to advance research to better understand MND and the desperate need for an effective treatment.

Members of the Research Committee of MND Research Australia review grant applications and determine the distribution of funds according to the MND Research Institute Criteria for Scientific Assessment.

This ensures that any money donated to MND Australia, state Motor Neurone Disease Associations and MND Research Australia for MND research only goes to research projects that are competitively assessed and reviewed. Researchers receiving grants from MND Research Australia are required to report on the outcome of their research and these reports are published on their website.

Visit Motor Neurone Disease Research Australia website.