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Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

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13 October 2026

Provide your feedback about disaster preparedness, response and recovery

We are pleased the NSW Reconstruction Authority is seeking feedback from the MND community in the development of their Disability Inclusion Actio...
13 October 2026

How an Occupational Therapist can Help People with MND

Occupational Therapy Week is celebrated from 26 October to 1 November and acknowledges the vital contribution that these allied health professionals p...
13 October 2026

You Are Not Alone: MND and Mental Health Awareness Month

People living with MND, their families, and carers understand that MND can be overwhelming with constant changes and challenges to cope with. If you a...
13 October 2026

Top 5 Frequently Asked Questions from September 2026

Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from people living with MN...
02 October 2026

Merriwa Trivia Night 2026

We'd like to thank the organisers of Let's Party Merriwa, who hosted a trivia night recently in the leadup to the event. What a fantastic night of fun...
30 September 2026

Nicole is taking part in Walk to Defeat MND Port Macquarie - will you join her for a good cause?

Since her mum was diagnosed with motor neurone disease over a year ago, Port Macquarie local Nicole Potter has supported MND NSW by joining local Walk...
30 September 2026

Thank you to our Community Fundraisers

We've seen some amazing community spirit shown by our supporters, who have been very busy raising awareness and much-needed funds to assist families f...
30 September 2026

Will you join Cathy at Walk to Defeat MND Port Macquarie?

Wauchope local Cathy Eggert has been stepping up to support MND NSW since her brother Tim was diagnosed with motor neurone disease four years ago. She...
23 September 2026

Help shape a national e-Learning course about equipment and assistive technology

People living with MND must have access to equipment and assistive technology that meets their changing needs. Experiences vary across the country.&nb...
20 September 2026

Congratulations to all 2026 NSW Volunteer of the Year Nominees

We love to celebrate how special our volunteers are, and the amazing work they do for us! After being nominated for 2026 NSW Volunteer of the Year awa...
17 September 2026

Calls for Urgent Action on Aged Care Assessment Tool

MND NSW supports MND Australia's calls for greater transparency about the outcome of the Government’s review of the Integrated Assessment Tool (I...
14 September 2026

Top 5 Frequently Asked Questions from August 2026

A diagnosis of Motor Neurone Disease (MND) can raise many questions for the person receiving the diagnosis as well as their family, friends and suppor...