Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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The Federal Government and Department of Social Services have developed and launched a new service for Australians living with disability. The Disability Gateway aims to provide information to help people with disability, their family, friends and carers, to find the support they need.

Mother’s Day can be a particularly difficult time for many people. It’s a day that is often seen as a time to celebrate and spend time with loved ones, but it can also be yet another reminder of a loss, and this can trigger emotions of grief and sadness.

Do you have a family history of MND? Have you considered, or previously received, predictive genetic testing for MND?

You are invited to participate in a study that aims to understand the psychological impacts of familial MND and predictive genetic testing. 

State of Play - Webinar Series 2021

State of Play is a Webinar Series organised by MND Research Australia. It is dedicated to all members of the MND Community and aims to introduce the advancements of the research community in Australia.

Following the success of the health and wellbeing workshops held during Carers Week 2020, Carers NSW is inviting carers to join a range of self-care and wellbeing events in May 2021.

The research project, ALS Quest, is approaching its deadline on 28 May 2021. This study is looking for risk factors that might contribute to the development of motor neurone disease (MND) and is an online anonymous questionnaire which asks a series of questions that may provide clues as to what factors trigger MND in some people. 

The Mobility Parking Scheme provides special parking conditions and concessions to eligible people with a disability. All Australian states and territories participate in the Australian Disability Parking Scheme, so you can use a valid and current permit Australia-wide. 

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Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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