Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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Carer Gateway helps carers. Carer Gateway is an Australian Government initiative for anyone who is an unpaid carer.

If you care for a family member or friend, then Carer Gateway could help you.

As we are currently facing increasing cases of community transmission, we will try to provide you with the latest information about how you can keep yourself and your family safe, and find out what support is available.

Around 10% of people diagnosed with MND have a ‘familial’ form of the condition; meaning there are two or more affected members within their family. Most people diagnosed with MND have what is called ‘sporadic’ MND, so although there may be a genetic element involved, other family members will not be affected.

Times of celebration and significant events, like Christmas, can be a particularly difficult time for many people. It’s a day that is often seen as a time to celebrate and spend time with loved ones, but it can also be yet another reminder of a loss, and this can trigger emotions of grief and sadness.

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Couldn't get to Ask the Experts or the SIG workshop?

Catch up at the MND NSW YouTube Channel.

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About us

What is MND NSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Support our work. Buy MND NSW merchandise here.

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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