National Volunteer Week 2025 - Thank You to our Fantastic Volunteers!
This week is National Volunteer Week, and we'd like to take the opportunity to thank all our amazing volunteers.
MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.
Some people like to help by volunteering to be involved in MND awareness-raising, fundraising or administration activities. Others help by…
Read MoreFlexEquip, the MND NSW Equipment Service, provides equipment for people with rapidly progressive neurological conditions, including MND.
Read MoreThis week is National Volunteer Week, and we'd like to take the opportunity to thank all our amazing volunteers.
In early 2025, Anna said goodbye to her husband Nick, following his brave battle against MND. Anna and Nick shared many happy times together, but as his condition progressed, motor neurone disease took away the things he enjoyed doing most. He could no longer enjoy some of his favourite foods or adventures to beautiful locales. However, most devastating for Nick was that MND robbed him of the future he dreamed of - it quickly put a halt to sharing precious moments and making memories with his family.
Between January and March, we connected with carers who are part of the MND NSW carer program. MND NSW would like to thank you for generously giving up your precious time and sharing your unique experience with us. It was an absolute privilege to hear your stories.
Another month has flown by, and the MND NSW Info Line has been busy, responding to over 100 enquiries. In April, common questions were about clinical trials, what MND doesn’t affect, itchiness and sleep difficulties.
From Sunday 11 May to Saturday 17 May, Australia celebrates National Palliative Care Week. Now in its 30th year, the week raises awareness about the value of palliative care and encourages Australians to start meaningful conversations about future care needs.
If you can't find the equipment you need in the FlexEquip standard range, check out the Miscellaneous Items category on the FlexEquip website—you might find exactly what you're looking for!
Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.
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