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MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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One day, motor neurone disease will take everything from Sharon. Until then, will you help her make the most of life?

You may have received our Christmas appeal in the mail recently sharing the story of Sharon and her family but we really wanted to share Sharon’s story with you again as it’s one that really hits home about the effects of MND—but it’s also one of hope as we see the amazing strength so many in our community show every day, just like Sharon and her family demonstrate.

2020 has certainly been a year to remember. It started with bushfires, then floods and just when we were starting to relax it hit us with Covid 19. But through it all our amazing supporters have adapted and continued to fundraise for us.  We had an unprecedented response to our Winter appeal with over $152,000 raised. Then with no physical community events able to go ahead, everything was taken online and what amazing support we’ve received. Through online challenge pages, beautiful in memoriam pages, dedicated cornflowers and our Virtual Walk you’ve raised $233,474 for us to date.  A fantastic result at any time, but in a Covid year, it really tells us what amazing supporters we have.

As we approach the end of the year and the run up to the holiday season, we wanted to share some ideas to help make your Christmas special.

Here are some suggestions for clothing, unique gifts and how to enjoy meals together over the festive season.

The Ambulance Service of NSW has developed two types of care plans to help ambulance staff to make the best decisions in the event of an emergency. Ambulance Care Plans authorise paramedics to provide individually tailored treatment based on the directions documented in their plan by their health practitioner. 

In late October Debra Larizza a long-term volunteer and Life Member of MND NSW is going to retire. While no-one deserves the chance to relax more than Debra, we can’t say that we’re not disappointed she’s going, because she is definitely one of the best volunteers ever!

One of the many inspiring qualities of the MND Community is the way that it demonstrates support and encouragement. This year MND NSW has introduced online options to allow people with MND and their family members to connect, learn and to support one another without distance being a barrier. We have had family members of people with MND in NSW & ACT connect to our events from other parts of Australia, New Zealand and Singapore and as far away as Ireland!

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About us

What is MND NSW and what do we do?

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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