Did you know around 37% of injury-related deaths are caused by falls?

This April Falls, we are promoting the campaign – Better Balance for Falls Prevention and taking part in raising awareness of the impact of falls and good practice in falls prevention.

It’s National Advanced Care Planning Week - Let’s get Advanced Care Planning!

Advanced Care Planning is for everyone, regardless of age or health.

Swallow Awareness Day is on Thursday 16 March 2023 and the theme this year is ‘Dysphagia. A difficult diagnosis to swallow.’ The day raises awareness for swallowing disorders and encourages people who are experiencing swallow changes to connect with health professionals to access support.

This week we celebrate International Feeding Tube Awareness Week at MND NSW.

We take part in this celebration because for many people living with MND, a feeding tube is an opportunity to live better for longer. The heartbeat logo of this year’s celebration symbolises how feeding tubes save lives.

MND NSW is excited to announce surveys are now open for you to have your say about accessing specialised and coordinated MND healthcare in NSW and the potential use of telehealth in supporting people who live in regional and remote areas. 

It is set to be a big year at MND NSW as we continue to support people living with MND to access the best possible care and support.

Special occasions like Easter can tend to focus on enjoying and sharing food with family and friends. This can be a challenging time for someone with MND, who may have a modified diet or a PEG, and they may feel that they are missing out.

So, we have some suggestions for ways to make enjoyable treats for those with dysphagia so no one misses out on their Easter chocolate!

Presented by Professor Steve Vucic. Summary provided by MND NSW

There are many worldwide collaborative research projects searching for new and effective treatments for MND and this includes clinical trials. It is important to remember that clinical trials are not treatments, they are scientific experiments to test out potential new treatments.