Welcome

MND NSW provides information, support and education for people living with motor neurone disease, their families, friends and carers in NSW, ACT and NT. We also provide information and education about motor neurone disease for health, community and residential care professionals.

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As several areas of Australia are currently facing restrictions due to community cases of coronavirus, now is a good time to ensure you have the latest information about how you can keep yourself and your family safe and to find out what support is available.

The Australian Bureau of Statistics has established that 1.2 million Australians have a communication disability, and this includes people living with MND who experience difficulties with their speech.

This week is Speech Pathology Week and the theme is ‘Communication is everyone's right’.

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

 

Marjorie’s Story

Marjorie is a one-of-a-kind, very special person. She started MND NSW back in 1981 (then known as Amyotrophic Lateral Sclerosis Society of Australia) after her husband, Bill, was diagnosed with ALS, the most common form of motor neurone disease (MND).

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. 

You can help MND NSW continue supporting people with motor neurone disease by making a donation here.

Margaret’s Story

Margaret has been volunteering with MND NSW for just over 18 years.

In September of 2002, her husband was diagnosed with MND. At first she thought she would have at least a few more years with him but his illness progressed quickly.

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About us

What is MND NSW and what do we do?

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Find out more about MND

Resources for families and health professionals

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Including MND NSW in your Will

Leaving MND NSW a gift in your Will can make all the difference to people living with motor neurone disease.

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