Specific information about managing particular aspects of motor neurone disease. Includes information about symptom management and practical guides and links for accessing services and resources.

15 page A4 quick reference list with online links to information, services and resources that may be of interest to people living with MND in NSW, the ACT and NT. 

22 minute video or DVD providing information and strategies about managing the changes involved when a person is experiencing swallowing difficulties. Covers a wide range of management issues such as how carers can help, consistency of food and liquid, foods to avoid, eating and drinking styles, positions for eating and drinking, special utensils, and saliva problems. The information presented is not specific to the swallowing problems caused by motor neurone disease.

2 page fact sheet providing information about and strategies about planning ahead outlining arrangements you might consider setting in place including

  • advance care planning - medical care and treatment
  • appointing a substitute decision-maker - health care, lifestyle or finances
  • making a Will - finances
  • donating tissue
Living Better for Longer evidence-based fact sheets

Series of 8 two-page ‘Living Better for Longer' evidence-based facts sheets published 2019. Each fact sheet explores interventions that research has shown helps people live better for longer with motor neurone disease.

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