We are back in 2021 with a host of online events and get togethers, so we can continue to share information and make connections within our community.
We hopefully will also be able to resume our in-person support groups, but more information to follow on this in January. Keep an eye on our events page and social media for updates.
MND General Information Sessions
This 90-minute online presentation provides information on the basics of MND as well as what supports are available. This is a recommended program for anyone who has been recently diagnosed or who is supporting someone who is newly diagnosed. If you are keen to know more or want to find out about MND NSW and what we do, then why not reserve a place in our next event!
Chat and Connect
Each month our Support Services team members make themselves available for people to connect with us online. These sessions are facilitated and are designed to respond to the questions and needs of those who attend. These sessions also offer keyboard chat so that typing or assistive technology can be used. Come armed with a cuppa and any questions you may have, and we will be there to connect with you.
Peer 2 Peer Carer Support
Kate Maguire, our Carer Support Program Coordinator, leads this group who meet monthly to share their experiences of caring. As well as support, carers will learn from one another as to what does and doesn’t work when supporting someone with complex needs as well as juggling life and family commitments. Stay for the whole session or just pop by to say hello, our carers set their own pace.
Younger Carers (18-35 yrs) Peer Support
This group meets regularly throughout the year to support one another in their caring role for a parent, friend or relative and recognises the unique challenges younger carers face. While not every problem can be solved, having others to speak with who share your experiences can be incredibly beneficial. An experienced member of the MND Support Services team facilitates these sessions to ensure everyone gets the most out of talking together.
MND NSW Support Groups
Support groups offer people living with MND and their carers an opportunity to meet and to learn more about living well with MND. Our MND Advisors lead these groups and provide education as a part of these sessions. Support groups run regionally to ensure participants can link up with others in their area and so local knowledge can be shared. Currently all support groups are being held online due to social distancing and COVID-19 restrictions. This information will be updated in January 2021 once NSW Health recommendations are known.