In the past year we have worked hard to support our members in achieving key communications needs. We have helped them with the communications challenges presented by daily life. We have reorganised and augmented our team to facilitate the individualised pre-planning and third-party communications necessary to help members aged under 65 years make the most of their NDIS plans. We have continued to work on communicating our cause to the public in order to fund research that will lead to a cure. Read more about our work in the MND NSW Annual Review 2017.
MND NSW in the communications age
Latest News
QALSODY (tofersen) Listed on the PBS
MND NSW and MND Australia have joined FightMND in welcoming the Australian Government's decision to list QALSODY (tofersen) on the Pharmaceutical Bene...
Thank You to Yarralumla Uniting Church
We'd like to say a big thank you to Bronwyn Hendy and the Yarralumla Uniting Church (YUC) for their Hymnfest and Afternoon Tea for MND fundraiser...
MND Care Practices in Australia: Healthcare Survey
Healthcare professionals who currently provide, or have recently provided, care for people living with MND are invited to take part in a short survey...
MND is a Notifiable Disease in NSW - What Does it Mean for You?
On 1 September 2026, motor neurone disease officially became a notifiable disease in NSW, making it the very first jurisdiction in Australia to report...