Last month we received a number of questions about education courses, the National Disability Insurance Scheme (NDIS), FlexEquip eligibility and more. Here are your top-5:
1. Where can I find online courses about MND?
The MND Hub is where you can find courses about MND. Courses include:
- MND Aware- a comprehensive course about MND
- Palliative Care
- Person-Centred Care and Multi-Disciplinary Team (MDT)
- Symptom Management
- Genetic Counselling
- Introduction to Caring
- Emotional and Behavioral Change
- Communication
All courses on the MND Hub are free for people living with MND and their family.
2. What is the average life expectancy for someone who has been diagnosed with MND?
Life expectancy for someone who has been diagnosed with MND varies from person-to-person and can be influenced by the type of MND.
MND affects everyone differently. There are several symptom management strategies that improve quality of life and may prolong life, including:
According to MND Australia, the average life expectancy for the four main types of MND is:
- Amyotrophic Lateral Sclerosis (ALS)- average life expectancy of 2 to 5 years.
- Progressive Bulbar Palsy (PBP)- average life expectancy of 6 months to 3 years.
- Progressive Muscular Atrophy (PMA)- average life expectancy of over 5 years.
- Primary Lateral Sclerosis (PLS)- slowest progressive form of MND with an average life expectancy of 10-20 years
For further information, visit:
3. I have engaged a new provider, and the staff have limited MND knowledge, can MND NSW help?
If you have engaged a new provider and the staff have limited experience with MND, there are several supports and resources available through MND NSW.
Contact your MND Advisor
MND Advisors are qualified health and community care professionals with specific knowledge and experience related to MND. A part of their role is to provide information and education about MND to health and community care professionals so they understand MND and can confidently provide care and support. Ask your MND Advisor to contact your new provider to talk about upskilling their staff about MND.
1-hour In-service
Delivered by the MND Advisor team either in-person or via MS Teams, the 1-hour in-service is available without cost to any organisation supporting a person who is living with MND and who is accessing our Advisor program. The in-service provides a general overview of what MND is, symptoms and symptoms management strategies.
Tailored Education
We also offer tailored education packaged to service providers at a reasonable and negotiated cost.
Information about MND
We provide a range of resources for health and community care professionals. Your MND Advisor can send your provider hard copies of our publications without cost. A full range of resources are available at: Information resources
MND Hub
The MND Hub hosts a range of course related to MND which are suitable for health and community care professionals, this includes the MND Aware Course. For further information on the range of courses, visit: MND Hub
For further information, contact your local MND Advisor or the MND NSW Info Line on 1800 777 175. Find out more about our education program: Education and info sessions
4. What does the National Disability Insurance Scheme (NDIS) fund?
The NDIS provides individualised funding for:
- Support with daily activities, including personal care
- Transport to participate in community, social and economic activities
- Allied health and therapy
- Support with household tasks
- Assistive Technology and equipment
- Home Modifications.
For further information about NDIS funding speak with your MND Advisor, your NDIS Coordinator of Support or visit-
5. I don’t have MND, can I access FlexEquip?
If you have a NDIS Plan with assistive technology funding, you can access equipment from FlexEquip.
FlexEquip is available to people over the age of 65 with a diagnosis of MND who live in NSW, ACT and the NT. People over the aged of 65 without a diagnosis of MND are not eligible for FlexEquip.
For further information visit-
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