News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Cognitive and Behavioural Changes in MND and ALS
When someone is diagnosed with motor neurone disease (MND), the focus understandably tends to fall on movement, muscle weakness, and gradual changes i...
Sandra Bullock Speaks Out on Late Partner’s MND Experiences
Sandra Bullock is the latest high-profile personality to speak of her experiences with MND, known as ALS or Lou Gehrig’s disease in the US, after her...
Top 5 Frequently Asked Questions from July 2026
Each month the MND InfoLine receives a wide range of enquiries from people living with MND, their families, and health professionals. We have rounded...
Keep Connecting with Communication Aids this Speech Pathology Week 2026
MND can affect the nerves and muscles used for communication including speaking, facial expressions, gestures, and swallowing. Approximately, 80% of p...
Dying to Know Day is about Starting Important Conversations
Dying to Know Day (8 August 2026) is a time for everyone to have important conversations about death and dying with purpose, love, and a sense of lega...
Vale Bob Montgomery
We are deeply saddened to hear of the sudden passing of Bob Montgomery. For many years, Bob dedicated himself to raising vital funds and awareness for...
We Welcome Shane 'Richo' Richardson to the MND NSW Board
We'd like to give a warm welcome to Shane 'Richo' Richardson, who has just joined the MND NSW Board. He brings more than 30 years of executive leaders...
Grandfather and Grandson Complete 5,200km Ride for MND as Bowral Homecoming Nears
After battling relentless headwinds, freezing mornings and road trains on narrow single-lane roads, 82-year-old Bob Montgomery and his 18-year-old gra...
Thank You Deidree
We’d like to give a heartfelt thank you to Deidree Jones, who has been supporting MND NSW for over 25 years!Deidree has been a member of MND NSW since...
82-year-old Grandfather And Grandson Pedal Towards Bowral Finish In Epic Ride For MND
Southern Highlands local Bob Montgomery, 82, and his grandson Tom Malcolm, 18, are closing in on the final stages of their epic 5,200 kilometre r...
29km for 29 years of MND – Cynthia’s Story
For Cynthia Greentree, getting out and about during the week usually involves a good cause.Cynthia has lived with MND for 29 years, and this month she...
Join the team: Carer Coordinator
We are seeking a professional to work with a committed workforce, responsible for providing ongoing support, information and education to people livin...