News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Top-5 Frequently Asked Questions: February 2025
A busy February saw the MND NSW Info Line respond to well over 100 enquiries. This month’s Top-5 includes frequently asked questions about causes of M...
Arjo Sara Stedy Standing Lifter Available from FlexEquip
If you need a little extra help with transfers but want to stay as independent as possible, or if you’re a carer looking for a safe and simple way to...
Run for Tez and MND
In March, Andrew Wynne will be running from Newcastle to Port Macquarie to raise awareness about MND and funds to support people living with MND. His...
ElevenLabs Voice Banking Voucher Available from FlexEquip
We are excited to offer people living with MND access to the innovative new AI-developed voice banking/synthetic voice creation service from ElevenLab...
Are you emergency ready?
While we are the lucky country, as Australians we constantly face natural disasters. Summertime can signal the devastating impact that floods, fire an...
Top-5 Frequently Asked Questions from January 2025
Welcome to the first frequently asked questions blog of 2025. MND NSW staff are busy organising and planning for the upcoming 12 months. Keep an eye o...
Feeding Tubes Save Lives: Feeding Tube Awareness Week 2-8 February 2025
We take part in raising awareness about feeding tubes because for many people with MND, a feeding tube can improve quality of life and prolong life. M...
Volunteer Spotlight - Meet Rita
Rita Mir has been volunteering for MND NSW since 2022, spending time assisting in Bondi and in our Gladesville office helping with activities that sup...
Check your device: Medical devices and personal alarms affected by the 3G Mobile Network Closure
This is a reminder to check that your personal safety pendant, fall detection system or other personal alarm or medical device is connected to the 4G...
What’s the Difference Between MND, ALS and Lou Gehrig’s Disease?
Terminology and acronyms in the health and disability sectors can be confusing. An example of this is the difference between motor neurone disease (MN...
Jean and David's Story
For Jean and David Ward, a motor neurone disease (MND) diagnosis came completely out of the blue. After dealing with other health issues, unbekno...
MND NSW Reseach Grants
Thanks to your generous support, MND NSW has funded a grant as part of the 2025 MNDRA research grant program. Congratulations to Dr Abigail Pfaff from...