News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Nicole is taking part in Walk to Defeat MND Port Macquarie - will you join her for a good cause?
Since her mum was diagnosed with motor neurone disease over a year ago, Port Macquarie local Nicole Potter has supported MND NSW by joining local Walk...
Thank you to our Community Fundraisers
We've seen some amazing community spirit shown by our supporters, who have been very busy raising awareness and much-needed funds to assist families f...
Will you join Cathy at Walk to Defeat MND Port Macquarie?
Wauchope local Cathy Eggert has been stepping up to support MND NSW since her brother Tim was diagnosed with motor neurone disease four years ago. She...
Help shape a national e-Learning course about equipment and assistive technology
People living with MND must have access to equipment and assistive technology that meets their changing needs. Experiences vary across the country.&nb...
Congratulations to all 2026 NSW Volunteer of the Year Nominees
We love to celebrate how special our volunteers are, and the amazing work they do for us! After being nominated for 2026 NSW Volunteer of the Year awa...
Calls for Urgent Action on Aged Care Assessment Tool
MND NSW supports MND Australia's calls for greater transparency about the outcome of the Government’s review of the Integrated Assessment Tool (I...
Top 5 Frequently Asked Questions from August 2026
A diagnosis of Motor Neurone Disease (MND) can raise many questions for the person receiving the diagnosis as well as their family, friends and suppor...
QALSODY (tofersen) Listed on the PBS
MND NSW and MND Australia have joined FightMND in welcoming the Australian Government's decision to list QALSODY (tofersen) on the Pharmaceutical Bene...
Thank You to Yarralumla Uniting Church
We'd like to say a big thank you to Bronwyn Hendy and the Yarralumla Uniting Church (YUC) for their Hymnfest and Afternoon Tea for MND fundraiser...
MND Care Practices in Australia: Healthcare Survey
Healthcare professionals who currently provide, or have recently provided, care for people living with MND are invited to take part in a short survey...
MND is a Notifiable Disease in NSW - What Does it Mean for You?
On 1 September 2026, motor neurone disease officially became a notifiable disease in NSW, making it the very first jurisdiction in Australia to report...
Ways to Support People Living with MND
Motor neurone disease (MND) can change life in an instant, for the person diagnosed, and for everyone who loves them. Across New South Wales, the ACT...