News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Wesley Mission Carer Well-being workshops - Broadmeadow
Wesley Mission is conducting free carer wellbeing workshops in the Hunter at Broadmeadow in June. Carers attend two days from 9.30am to 2.30pm on...
Update on edaravone (Radicava)
More information on the drug edaravone (Radicava) recently approved by USA Food and Drug Administration (FDA) for the treatment of MND...
MND March of Faces Banners 18 and 19 now online
Australia's MND March of Faces Banners are a photographic display of people with motor neurone disease. The MND NSW March of Faces banners are display...
Peru Trek - Day 4
This morning we left Cusco city early, and the comfort of our hotel, flushing toilets and civilisation! After a windy, hilly drive, we stopped at a st...
The drug Radicava (edaravone) approved to treat ALS/MND in the USA
The U.S. Food and Drug Administration (FDA) has approved the drug Radicava (edaravone) to treat ALS/MND in the USA. Shown to slow progression in some...
Peru Trek - Day 3
Today we really got immersed into Inca heritage, starting with a visit to Awana Kanchu, ‘the weaving place’. Not only did we learn about the importanc...
ANXA11 – another gene closer to understanding MND
Researchers from King’s College London. Dr Bradley Smith and colleagues screened genetic data of an unusually high number of people of European origin...
Peru Trek - Day 2
After a fairly early rise for breakfast and transit back to the airport to make the last of our flights into Cusco, we could do nothing but laugh when...
Peru Trek - Day 1
Today was a very big day of travel - almost 24 hours after departing Australia’s biggest city, we finally landed in Lima, Peru’s biggest city, ho...
What's on in MND Week 7-13 May 2017
Each year the first full week of May marks MND Week. From 7 to 13 May 2017 our focus is Life Measured in Moments #7DaysWithMND but...
Wheelchair accessible Vivid Sydney light installations 2017
Over 23 nights between 26 May to 17 June, Vivid Light illuminates Sydney and precincts with mesmerising colour. More than 65 lighting installations wi...
Sweat for MND
Thank you to Stephen Johnson of Eternally Fit who held the second Sweat for MND event during April. The weather was kind and participants took pa...