leading neurologist gives talk about motor neurone disease

Our education team had an extensive education calendar prepared and planned for 2020, trialling new events, many in regional areas covering North, South, East and West of NSW and in the ACT. And just because the situation has changed we don’t want you to miss out so we’re taking as many education and information events as we can online.

MND Aware face to face training on the Central Coast

Before the craziness we now find ourselves in, we did get as far as the Central Coast in February where we ran a Living well with MND day for over 45 people living with MND, their family and friends.

The event kicked off this years education program with an amazing line up of speakers including Dr Anna Shultz, a leading neurologist who opened the day with an overview of motor neurone disease and outlined a number of available interventions for those living with the disease. We were delighted that Dr Shultz was able to join us, having just run the very first MND Clinic on the Central Coast earlier that week.

The strong message of the day was the importance of multidisciplinary care in being able to manage symptoms while maintaining a good quality of life. We would also like to acknowledge and thank our other speakers on the day: Dr Richard Lee, Kuba McCormack, Susannah Bonner, Emma Thomson, Tara Clubb and Matt Egan.

If you are interested in learning more about MND or any in joining any of our other education programs then please send us an email to This email address is being protected from spambots. You need JavaScript enabled to view it. and register your interest.

Event for Allied Health Professionals

The day after Living well with MND we ran a day specifically for allied health professionals. We had over 25 allied health professionals from across the Central Coast and a couple from the North Shore travel to attend. The purpose of the training was for the participants to learn more about the impact of MND, effective ways of responding to people living with MND, the importance of multidisciplinary care and we practiced this through case studies and role play.

As one participant said, the sessions they enjoyed most were the “group discussions, to get a different view from each Allied Health Professional”, and they also commented “I have a better understanding now of MND but I look forward to further education online through resources”.

This is a great comment as it’s exactly where we are heading now that we cannot offer face to face sessions in the foreseeable future.

We’re moving online so you don’t miss out

We’re progressively moving all of our education and carer programs online and some are being offered via teleconference. This means that despite some of the social distancing restrictions currently in place we’ll be able to get you the information you want when you need it. Our online resources include links to video presentations and printed information on a range of MND related topics. If there’s something you want us to include which isn’t there, then let us know and we will see what we can do!

And don’t forget we are always just a phone call away 1800 777 175.

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