News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Let’s Talk about Swallowing
Swallowing Awareness Day is held on 18 March 2026. It is a day dedicated to raising awareness about swallowing difficulties. Swallowing is something m...
Start the Conversation this National Advance Care Planning Week 16-22 March 2026
The theme for this year’s National Care Planning Week is ‘Your story, your choice’ and is a good reminder to pause and think about what matters most....
Top 5 Frequently Asked Questions from February 2026
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top five questions we’ve been asked lately from across NSW, ACT an...
A Journey Shared: Mateship, Malaya and Me
John Meldrum has authored ‘A Journey Shared: Mateship, Malaya and Me’, with proceeds from the sale of the book being donated to MND NSW. His book is a...
Volunteer Spotlight - meet Trish
Trish Carling has been a familiar face at our ACT Support Group meetings for over a year now. She began volunteering for MND NSW in 2024, keen to supp...
Let's Party Merriwa
In January, Leanne Hook and the Merriwa and District Chamber of Commerce and Industry Incorporated held the ‘Let’s Party’ event in support of MND NSW....
What you told us about our strengths and opportunities for improvement
In late 2025 we gathered feedback from people accessing our services via an online survey. Your feedback highlights both our strengths as well as some...
Top 5 Frequently Asked Questions from January 2026
Receiving a diagnosis of Motor Neurone Disease (MND), supporting someone living with MND, or caring for a loved one can raise many questions. Here are...
Navigating Motor Neurone Disease (MND), Sex, and Intimacy
Whether you take part in celebrating Valentine’s Day or not, it has become a significant cultural and commercial event in Australia. This day can stil...
Community Fundraising Champions – Jennifer Barrett and Robert Akers
Since 2021, Jennifer Barrett, Robert Akers, and committee members Bev Seiver, Mia Clancy, Matthew Dumbrill, Alex Connell, have been hosting the Andrew...
Top 5 Frequently Asked Questions from December 2025
Welcome to this month’s insights from the MND NSW Info Line! We have rounded up the top 5 questions we’ve been asked lately from across NSW, ACT and N...
Happy New Year from the MND NSW Carers Program
2025 was a big year for the MND Carers Program…. And 2026 is set to be even bigger! Let’s recap what we achieved together…. Our goal was to boost the...