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News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

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11 June 2021

EMERALD trial - currently recruiting

The EMERALD trial is a double blind placebo clinical trial looking at the benefits of medicinal cannabis for MND. This is a study looking at the effec...
09 June 2021

Lily's Story

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts.  You...
08 June 2021

Elliot's Story

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. You can he...
28 May 2021

Tea Towel Design Competition

Want to see your design on our latest merch AND help support people living with motor neurone disease? Then make sure you enter our tea towel design c...
28 May 2021

Julie Becke's Story

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts.  You...
26 May 2021

Palliative Care Week 2021

This week is National Palliative Care Week which aims to raise awareness and understanding of palliative care in the Australian community. This year’s...
18 May 2021

MND Week 2021 - Thankyou for Sharing Your Stories

For MND Week this year, we asked you to share your stories. We were blown away by the beautiful, heartfelt stories you shared about your MND journey,...
13 May 2021

Research Study - Young Carers

Are you a young carer, or know a young carer who would like to participate in a study being held by Griffith University? A young carer is someone unde...
06 May 2021

Carer health and wellbeing

Following the success of the health and wellbeing workshops held during Carers Week 2020, Carers NSW is inviting carers to join a range of self-care a...
06 May 2021

Grief and significant events

Times of celebration and significant events, like Father's Day, can be a particularly difficult time for many people. It’s a day that is often seen as...
05 May 2021

Research study - Genetic testing for MND

Do you have a family history of MND? Have you considered, or previously received, predictive genetic testing for MND? You are invited to particip...
30 April 2021

Judy’s Story

To mark 40 years of MND New South Wales this year, we are highlighting 40 years of stories from our members, staff, volunteers and experts. You can he...