Changing context of MND research
The resources and support for MND research have expanded considerably over the last few years both in Australia and internationally. In Australia, the entrance of Neale Daniher and FightMND into the MND Research scene, in addition to the established presence of MND Research Australia, has resulted in a momentum in the MND research space that has never been seen before.

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Genetic testing is becoming more widely available for people with motor neurone disease (MND). Currently, not everyone with MND is offered genetic testing, but this may change in the future. This study is being undertaken as part of a PhD project into genetic testing at the University of Technology Sydney.

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