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Calling all MND carers in NSW, ACT and the NT – Share your stories!

National Carers Week 2025 is fast approaching. This year it falls between 12-18 October.

It’s a time to recognise, celebrate and raise awareness about the three million Australians who provide unpaid care and support to family members and friends.  We want to spotlight you!

If you live in NSW, ACT or the NT and you are caring for a person with MND, we want to share your story far and wide on our social media channels, our website and in our newsletters.

This is an opportunity to tell your story as a MND carer and to celebrate your ongoing commitment and the important role that you play supporting a person living with MND.

What’s involved?

We know how busy you as a MND carer. We will support you to share your story in a quick and easy way that works for you. We want to promote as many MND carers as possible by sharing:

  • quotes
  • short or long stories with photos
  • short videos of you and your family
  • do you have another idea? let’s get creative!

Do you have self-care strategies that get you through the day? Tell us!

We know that many people find caring rewarding. But make no mistake, caring for a family member or friend who is living with MND is tough. You may often feel alone and isolated, yet quietly and consistently you always soldier on.

Let others know what keeps you going and what would you share with another MND carer that is about to start their journey of caring.

We want to capture and spotlight your resilience, to encourage others to keep forging ahead despite the challenges that you face as carers.

  • What does your day look like?
  • What are the daily self-care strategies that you have in place for yourself?
  • How do you prepare, rest and recover as you ride the roller coaster of emotion that comes with supporting your loved one?
  • How do you make the most out of life and create positive memories?
  • We want to hear about your support networks too, the people and friends that you’ve met along the way
  • How did you create them as you balance your busy and everchanging role?
  • How does your family, friends including the furry ones get you through the day?
  • How does MND NSW services support you as a carer?

How to get involved and share your story

To get involved, contact Amanda at  This email address is being protected from spambots. You need JavaScript enabled to view it.   by 31 August who will  then arrange a time that suits you to have a chat.

Thanks in advance!

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“We can't do this alone. But together, we're unstoppable.”
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