The MND Special Interest Group is an informal network of health and community care professionals interested in the care of people with motor neurone disease.

MND Special Interest Group

  • promotes best practice multidisciplinary care for all people living with MND
  • enables the dissemination of MND specific information to health and community care professionals
  • encourages the sharing of expertise in MND.

The key focus areas of the group are:

  • communication, swallowing and nutrition
  • independent living
  • psychosocial and supportive care

Meetings and communication

Members of the MND SIG receive a bi-monthly e-bulletin containing the latest MND news, research, information, links, abstracts and full text articles.

MND SIG workshops are usually conducted every second year in Sydney. They provide a forum to update, expand and gain new knowledge about motor neurone disease. They also provide an opportunity for health and community care professionals to meet with others involved in the care of people with MND.

Membership of MND SIG is free and open to all health and community care professionals with an interest in motor neurone disease including:

  • case managers and case workers
  • community workers
  • counsellors
  • dietitians
  • general practitioners
  • home care service coordinators and staff
  • medical specialists
  • nurses
  • occupational therapists
  • palliative care teams
  • physiotherapists
  • psychologists
  • social workers
  • speech pathologists
  • spiritual counsellors
  • others

To join the MND Special Interest Group, complete MND SIG online registration form or download, print and return the form below.

Join the MND NSW CommSPOT Peer Support Network
If you are a speech pathologist or occupational therapist you may like to consider joining the MND NSW CommSPOT Peer Support Network. The Network was launched in June 2015 and is designed to link those who want to share information, experiences, ideas and advice on MND client computer access and communication needs and goals. To be eligible to join you need to be:

  • a speech pathologist or an occupational therapist (SPOT) with an interest in MND

The CommSPOT Peer Support Network is a closed Facebook group (only group members can see posts).  We have developed a tip sheet about how to configure your basic privacy settings to control what others see about you on Facebook. You can download the tip sheet below. We look forward to you joining the conversation in the CommSPOT Peer Support Network.