On Sunday 3 March 2019 Channel 10 The Project spoke with sisters Kaitlyn and Jessica Ellis about the impact of having an MND related genetic mutation, which increases the risk of later developing MND.
They also talked about MND Genies, the MND NSW closed Facebook group where people can connect and share their experiences.
You can watch online here (the interview starts at around 15mins into the program) until 3 June 2019.
Find out more about MND Genies here https://www.mndnsw.asn.au/what-we-do/groups/1299-mnd-genies.html