In this section you can read about the National Disability Insurance Scheme (NDIS). The NDIS is available to people aged under 65 years. It provides assistance to people living with a disability, including people living with motor neurone disease. The types of supports the NDIS may fund for participants include household assistance, aids and equipment, home modification, vehicle modification, coordination of support and other reasonable and necessary supports for daily living and participation.

Does MND NSW provide advice and services for NDIS participants?

MND NSW has had nearly eight years of experience with the NDIS in NSW and the ACT. We are able to offer advice and insight for people with MND getting started with the NDIS. Generally, we have found the NDIS has offered greater choice and higher levels of support and services for people with MND than have been available in the past.

However we have also found that, because the system is relatively new, our members have benefited from speaking with their MND Advisor or the MND Info Line before their NDIS plan is developed. Your MND Advisor can talk to you about the best way to prepare for a planning meeting.

When your plan is developed, some services you currently receive or would like to receive from MND NSW must be included for you to receive those services. These include:

How do I access the NDIS?

The National Disability Insurance Scheme (NDIS) Pre-Planning Resource for people living with motor neurone disease (below) will assist you to prepare before you contact the NDIS. This resource has been designed to assist you identify the areas of your life the NDIS will need to consider when developing your NDIS plan. Complete the sections in this resource before your planning meeting.

To access the National Disability Insurance Scheme (NDIS) contact the NDIS contact centre ph. 1800 800 110 or visit

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Couldn't get to Ask the Experts or the SIG workshop?

Catch up at the MND NSW YouTube Channel.

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