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News

Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

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12 October 2023

Celebrating Multidisciplinary Care for International Allied Health Professions Day

We are celebrating Allied Health Professions Day on Saturday 15 October 2023. Allied health professionals play an important role in providing multidis...
10 October 2023

The Stewarts are Walking to d’Feet MND in Sydney

Leanne Stewart and her family are taking part in Walk to d’Feet MND Sydney, raising funds and awareness to ensure everyone living with MND and their f...
10 October 2023

September Top-5 Frequently Asked Questions

In September we responded to 102 enquiries! You kept us busy with lots of curly questions via the phone on 1800 777 175 and email at infoline@mndnsw.o...
29 September 2023

Energy Rebates for people living with MND and their family

Technology such as non-invasive ventilation (NIV), cough assist and suction machines are often used in the management of motor neurone disease. With t...
22 September 2023

Meet our FlexEquip Team - Nicole Smith

Our FlexEquip Team are here to help you get the equipment you need. In this blog series, we'd like to introduce you to some of our team members, findi...
20 September 2023

Volunteer Spotlight - Meet Zakhia

Since 2006, Zakhia Aoun has been volunteering for MND NSW in many different ways. A familiar face at our Walk to d’Feet MND events, she has assisted w...
14 September 2023

Dementia Action Week: Cognitive and Behavioural Change in MND

Dementia action week is from Monday 18 September to 24 September 2023, with world Alzheimer’s Day on Thursday 21 September. MND can cause changes to c...
11 September 2023

Do you have an MND gene mutation, but not MND? Join the MND Genies

The MND Genies is a closed Facebook group for people who have tested positive for a MND gene mutation but do not have MND. The informal support group...
08 September 2023

New Podcast Episode: Flying high

Sarah El-Wahsh grows up in Kuwait and wants to become a pilot, but then she decides to become a speech pathologist. Find out what a speechy does and h...
04 September 2023

The Info Line Top-5 Frequently Asked Questions from August 2023

August was another busy month for the team at the MND NSW Info Line. We responded to 85 enquires that we received via 1800 777 175 and our email infol...
21 August 2023

New podcast episode: I'm a young carer, but hey

Lauren is 17 when she wins the design competition for the national MND Youth Hub. A cup of oatmeal in the morning symbolises her beautiful relationshi...
16 August 2023

Communicating for life: Communication aids and equipment

This Speech Pathology Week we are taking part in promoting the important work of Speech Pathologists in supporting quality of life for the 1.2 million...