News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
Volunteer Spotlight - meet Jill
Since 2010, Jill Paton has been coming to volunteer for MND NSW at our Gladesville office, often helping us to pack merchandise, and our Print News to...
Speech Pathology Week: Communication aids and equipment
This Speech Pathology Week we are sharing the range of communication aids available from MND NSW and FlexEquip. Communicate your way – is the theme of...
Shelley's MND Marathon
Shelley is putting in a mega effort to run 700km in 3 months to raise awareness about MND, and raise vital funds for MND NSW so we can be there for pe...
Top-5 Frequently Asked Questions from July 2024
Last month we received a number of questions about education courses, the National Disability Insurance Scheme (NDIS), FlexEquip eligibility and more....
Equipment Spotlight: Handy Bar
This nifty little tool is for people who need a little extra support getting in and out of the car. The portable support handle fits into the car's pa...
Get dead set this dying to know day
8 August 2024 is dying to know day. If you haven’t already undertaken proactive planning for your future care and documented your choices for end of l...
Top-5 Frequently Asked Questions: June 2024
As we reach the halfway point of 2024, the MND Infoline has responded to over 500 enquiries. June’s frequently asked questions explore topics such as...
Leaders in the motor neurone disease field arrive in Canberra today
Every day two Australians are diagnosed with motor neurone disease (MND) and two die from the disease. With no cure and an average life expectancy of...
The Day of Hope and Remembrance 2024: Thank you for attending
Thank you to everyone who joined us at this special and inspiring event. Together we joined in strength and solidarity for people living with MN...
Stay Warm with MND Beanies, Socks, Hoodies and Scarves This Winter
Stay warm while you support the important work being done by MND NSW to improve the lives of people living with MND and their families. From classic b...
Top-5 Frequently Asked Questions: May 2024
We received lots of questions on a variety of topics at the MND info line in May, including, robotic feeders, booking accommodation along with c...
Early Signs of Motor Neurone Disease
Motor Neurone Disease (MND), also known as Amyotrophic Lateral Sclerosis (ALS), is an uncommon but devastating disease that affects the nerves (neuron...