News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
MND Alliance Patient Fellows Program & FightMND Grant: Applicaitons Open
Applications are open - Apply now! Attend the MND Association's International Symposium on ALS/MND & the International Alliance Conferences in Mon...
Rocky's Racing Adventure
Surrounded by the smell of burning rubber and the loud, heart-racing hum of F1 race cars, Rocky Pirrottina watched his team take victory in Melbourne...
Breath of Hope: Championing Cough Assistance in MND Care
Stephanie van Hilten has been a respiratory physiotherapist for 34 years, working in many areas of the cardiothoracic specialty - intensive care, surg...
National Volunteer Week 2024 - Thank You to our Amazing Volunteers!
This week is National Volunteer Week, and we'd like to take the opportunity to thank all our amazing volunteers. We see you helping us at the of...
Thank you to our wonderful Community Fundraisers
We’d like to say a big thank you to our community fundraisers for their amazing efforts! Recently they've completed runs, held Drink Tea for MND event...
Jason’s Story: Behavioural Change and MND
In this article Jason shares his experience managing behavioural change. The article also shares information about potential causes and possible signs...
Access to Palliative Care: Better Quality of Life
Palliative care is more than end of life care. It is a family-centered model of care that focuses on quality of life. It is for everyone who has a lif...
Top-5 Frequently Asked Questions: April 2024
Hot topics in April at the MND info line included, preparing for a power outage, types of ventilation, managing fatigue and more. We have chosen the t...
Insights into the 2023 Global Fundamental Rights Survey
The International Alliance of ALS/MND Associations have released insights from the 2023 Global Fundamental Rights Survey. These rights represent the g...
Our Delivery Van has Arrived!
MND NSW has generously been supplied a delivery van, which will help us get vital assistive equipment to people living with MND as quickly as possible...
Volunteer Spotlight - meet Susan
Since 2018, Susan Allaburton has been volunteering for MND NSW, volunteering at Walk to Defeat MND events and selling merchandise. She began volunteer...
Top-5 Frequently Asked Questions from March 2024
Another month of 2024 has come and gone. We’ve collected the top-5 questions that were sent into the Info line last month. 1. How do you manage thick...