News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.
National Science Week: Ways to Participate in MND Research
Established in 1997, National Science Week provides an opportunity to acknowledge the contributions of Australian scientists to the world of knowledge...
Put the D-Word Back on the Table and Get Dead Set this Dying to Know Day, 8 August 2023
Let’s put the D-word back on the table. Have a chat, make a plan and Get Dead Set this Dying to Know Day. The D-word, death, for many of us, is confro...
The Taxi Transport Subsidy Scheme and Accessible Taxis
The taxi transport subsidy scheme (TTSS) supports residents who are unable to use public transport because of their disability. If you’re eligible, yo...
New podcast episode: The way my mother was
Sue Fower is on a trip of a lifetime. When her group reaches Iran, she receives a letter from her mother, warning her that she will be in for a shock...
DonateLife Week 2023: Organ and tissue donation for MND research
DonateLife Week is from Sunday 23 July to Sunday 30 July. Most Australians believe it’s important to be an organ and tissue donor, yet only one in 3 a...
Put a voice to my soul
Mike Gilbert is 78 and just moved into a palliative care unit at a local hospital. He lost his voice two years ago, but still dedicates his time to ma...
New podcast episode: Small change, big difference
Fifteen-year-old Manasi Thornley takes a nap after going for a run. She wakes up completely paralysed and has to be moved, bathed, and fed by her fami...
Kerry is ready for the MND NSW Three Peaks Challenge - will you climb mountains for MND too?
For Kerry Thomas, taking on the MND NSW Three Peaks challenge in November is a chance to step outside of her comfort zone, spend time with her sister,...
Join Ian and Tracey at Walk to d'Feet MND Hunter this Sunday!
Ian and his wife Tracey are repeat Walkers, having come along to our Penrith, Port Macquarie, Hunter, Central Coast and our Virtual Walks previously,...
New podcast episode: Walk with me
New episode: ‘Walk with me’ is about our carer mentoring program. The episode features Jo Thorne, carer mentor, and Tony Houlcroft, mentee. They are n...
Are you ready for Walk to d'Feet MND Hunter 2023? Team N is!
Walk to d'Feet MND Hunter 2023 will be on at Speers Point Park on June 25, and Tony Houlcroft is gearing up for the event with the rest of his team ma...
Paul does not know how much longer he has a voice - will you help him keep it?
It took 12 months for doctors to diagnose Paul with MND. It was a massive shock. Now, being able to keep his voice when MND will take everything else...