Who are MND Advisors?

MND Advisors are qualified health and community care professionals with specific knowledge and experience related to MND. This support is available to:

  • people who have MND
  • family members
  • carers and other people close to the person living with MND
  • health and community care providers.

MND Advisors have a commitment to providing professional and appropriate support. All MND NSW staff, including MND Advisors, work within a code of conduct and participate in professional development activities related to their role. The MND Advisor’s relationship with a person living with MND is a professional and confidential one (for more information see the MND NSW Privacy Policy).

What do MND Advisors do?

  • Provide information for people recently diagnosed with MND, their families and carers.
  • Support the person living with MND, their family and carers by maintaining contact through home visits, telephone and email.
  • Assist people living with MND to identify what services they need or may need.
  • Provide referral and assistance for timely access to health and community services.
  • Assist with access to MND NSW equipment/assistive technology, support groups, carer education, information sessions and volunteer assistance where available.
  • Give information about, and liaise with, MND multidisciplinary clinics and services.
  • Advocate on behalf of people with MND and their carers.
  • Build networks with health and community care providers and provide information and education on MND.

Each MND Advisor is allocated an area of Sydney and/or NSW/ACT to be their primary focus. This enables them to develop local knowledge of the services available in their region and to create a network of contacts within these services. They periodically visit regional areas.

You can contact your MND Advisor by calling 1800 777 175 (NSW, ACT and NT).