News
Dive into real-life journeys, expert advice, and the latest updates from the MND community. Whether you're seeking support, sharing your experience, or staying informed — our blog is here to connect and uplift.

17 March 2025
Make Your Choices Matter: National Advance Care Planning Week
Advance care planning is all about ensuring you receive the care you choose should you be unable to communicate your preferences or make decisions. Na...

17 March 2025
Dysphagia is common for people living with MND: So, what is it?
Simply put, dysphagia means difficulty swallowing. According to Speech Pathology Australia, dysphagia can be any problem with the muscles in the mouth...

17 March 2025
Open the Gates!..to Carer Gateway
As carers, we often spend a lot of our time looking after others and sometimes we forget or don’t prioritise time to find out what supports are availa...

17 March 2025
Top-5 Frequently Asked Questions: February 2025
A busy February saw the MND NSW Info Line respond to well over 100 enquiries. This month’s Top-5 includes frequently asked questions about causes of M...

10 March 2025
Arjo Sara Stedy Standing Lifter Available from FlexEquip
If you need a little extra help with transfers but want to stay as independent as possible, or if you’re a carer looking for a safe and simple way to...

11 February 2025
Run for Tez and MND
In March, Andrew Wynne will be running from Newcastle to Port Macquarie to raise awareness about MND and funds to support people living with MND. His...

11 February 2025
ElevenLabs Voice Banking Voucher Available from FlexEquip
We are excited to offer people living with MND access to the innovative new AI-developed voice banking/synthetic voice creation service from ElevenLab...

11 February 2025
Are you emergency ready?
While we are the lucky country, as Australians we constantly face natural disasters. Summertime can signal the devastating impact that floods, fire an...

03 February 2025
Top-5 Frequently Asked Questions from January 2025
Welcome to the first frequently asked questions blog of 2025. MND NSW staff are busy organising and planning for the upcoming 12 months. Keep an eye o...

03 February 2025
Feeding Tubes Save Lives: Feeding Tube Awareness Week 2-8 February 2025
We take part in raising awareness about feeding tubes because for many people with MND, a feeding tube can improve quality of life and prolong life. M...

23 January 2025
Volunteer Spotlight - Meet Rita
Rita Mir has been volunteering for MND NSW since 2022, spending time assisting in Bondi and in our Gladesville office helping with activities that sup...

21 January 2025
Check your device: Medical devices and personal alarms affected by the 3G Mobile Network Closure
This is a reminder to check that your personal safety pendant, fall detection system or other personal alarm or medical device is connected to the 4G...