Blog

The MND NSW e-news September 2019 edition was emailed to members and subscribers on 2 September. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.

We have scheduled two online Chat and Connect sessions to be held on Wednesday 18 September 2019. This is an exciting development for us as we look forward to being able to connect with our MND Community right across NSW and ACT through our online platform. If you have internet access via a smart phone, tablet, pc or laptop then you will be able to access the session. Find out more here.

MND NSW members and their families are invited to attend this year’s Careflight Magic Mania extravaganza. This annual event is a fun and family filled afternoon of music, bright lights, dancing, clowns, magicians, illusionists and acrobats. This is a unique day, primarily aimed at children’s enjoyment, with guests attending from a range of organisations that support families through illness, disability and financial hardship. This is a free show and a great day out for the family at the Quaycentre (formerly the State Sports Centre) in Sydney Olympic Park. Save the date - Saturday 14 December 2019 and, because we anticipate that these free shows will fill quickly, MND NSW members and families can let us know of their interest in attending by emailling This email address is being protected from spambots. You need JavaScript enabled to view it. with the number of free tickets you would like, or by contacting the MND Info Line ph 02 8877 0999 or 1800 777 175.

Leading international ALS/MND researchers are providing the MND community with the opportunity to ask questions about latest research advances from around the world at the 2019 International Ask the Experts on 2 December in Perth. If you can't attend, register for the live stream. Speakers include Professor Matthew Kiernan AM - (Australia), Professor Ammar Al Chalabi (UK) and Professor Merit Cudkowicz (USA).

You are invited to participate in an ongoing research project that is looking for risk factors that might contribute to the development of motor neurone disease (MND). An online anonymous questionnaire asks a series of questions that may provide clues as to what factors trigger MND in some people. Anyone is welcome to complete the questionnaire - people with a sporadic or familial form of MND, their relatives and also people without MND in order to compare lifestyle factors. This questionnaire can be completed regardless of geographical location, so please share with any friends or family who may live overseas who would be happy to contribute.