Between January and March, we connected with carers who are part of the MND NSW carer program. MND NSW would like to thank you for generously giving up your precious time and sharing your unique experience with us. It was an absolute privilege to hear your stories.
We'd like to say a big thank you to Kylie and Jenna who hosted the MND Walk for Elisa Baker with family and friends, held on April 26. They raised over $6,300 for MND NSW, all in memory of Elisa, who sadly passed away from MND earlier this year. Jenna has shared their story about the event:
Another month has flown by, and the MND NSW Info Line has been busy, responding to over 100 enquiries. In April, common questions were about clinical trials, what MND doesn’t affect, itchiness and sleep difficulties.
From Sunday 11 May to Saturday 17 May, Australia celebrates National Palliative Care Week. Now in its 30th year, the week raises awareness about the value of palliative care and encourages Australians to start meaningful conversations about future care needs.
If you need help with communication, FlexEquip makes it easy. You can hire an iPad with apps like Assistive Express, Predictable, or Proloquo2go, ready to use and tailored to your needs.
