Blog

The MND NSW e-news July 2019 edition was emailed to members and subscribers on 28 June. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.

Carers NSW is organising a Carer Representative training session in Newcastle in September 2019. If you are 18 years or above, and you would like to speak up on behalf of carers, you can find out more about the Carers NSW Carer Representation Program on the Carers NSW website or express your interest by emailing This email address is being protected from spambots. You need JavaScript enabled to view it. or calling 1800 242 636.

Daniel Samuel and his father recently visited our office in Gladesville to present $2,080 raised from growing and then cutting off his Afro! Daniel was deeply touched by hearing from friends and family about MND and wanted to do something to increase awareness and raise money for MND. Pictured is Daniel with CEO, Graham Opie. Thank you Daniel for your fantastic support!

On Sunday 26 May Run MND Sutherland Shire saw 425 participants smash out either a 5k or 10k walk or run at Don Lucas Reserve and Wanda Beach in Cronulla. This year’s new Sutherland Shire route was tough but everyone finished with a smile on their face having completed the course.

On the same day 230 inaugural Run MND Central Coast participants completed their 5k or 10k walk or run at Long Jetty Foreshore.

With Run MND Sutherland Shire raising over $63,000 and Run MND Central Coast raising $17,000, a phenomenal $80,000 was raised for MND support services and MND research by the participants and their supporters. A big thank you to the event sponsors and to our community fundraisers Sophy Townsend and Kim Lindsay.

Congratulations to Gary White on a fantastic achievement trekking the Te Araroa long trail in New Zealand and raising $11,830 for MND. Read more for Gary's story about taking on this trek.