Blog

Rita Mir has been volunteering for MND NSW since 2022, spending time assisting in Bondi and in our Gladesville office helping with activities that support and raise funds for people living with MND.

This is a reminder to check that your personal safety pendant, fall detection system or other personal alarm or medical device is connected to the 4G network. On 28 October 2024 the 3G mobile network was shut down. If you have a medical device or personal alarm on the 3G network, it will no longer work.

Terminology and acronyms in the health and disability sectors can be confusing. An example of this is the difference between motor neurone disease (MND), amyotrophic lateral sclerosis (ALS) and Lou Gehrig’s Disease. In Australia we generally use the term motor neurone disease or MND, so what’s the difference between MND, ALS and Lou Gehrig’s Disease?

For Jean and David Ward, a motor neurone disease (MND) diagnosis came completely out of the blue. 

After dealing with other health issues, unbeknownst to them, David experienced problems with some of his medication, affecting the nerves in his legs. His niggling joint pain was also put down to osteoarthritis. 

Thanks to your generous support, MND NSW has funded a grant as part of the 2025 MNDRA research grant program.

Congratulations to Dr Abigail Pfaff from Murdoch University, who has received the Dr Paul Brock MND Research Grant for her studies of retrotransposons, a type of mobile DNA ,and their activity profile in people experiencing MND. We look forward to the knowledge gained about MND and potential treatment improvements as a result of your research.