The first clinical trial of copper-ATSM as a potential treatment option for MND will start in 2016. Importantly, copper-ATSM therapy was developed in Australia, the first-in-man clinical study is being performed in Australia, and the sponsor is an Australian company (CMD).
The Doll Collectors Club of NSW was formed in 1978 and each year members nominate a charity that the club will support. MND NSW was the chosen charity for 2015. Funds were raised at events throughout the year, including the 34th Liverpool Doll Fair held in July. This is the largest doll fair in Australia and includes hundreds of traders with dolls, bears, miniatures, toys, craft items, dolls clothes and accessories.
You can watch the recording of a webinar held yesterday where Richard Bedlack, MD, PhD, Duke ALS Clinic, reviews alternative and off-label treatments for ALS/MND. He demonstrates the huge number of these, the reasons patients try them, and some of the risks involved. He explains an international program called ALSUntangled which uses social networking tools to help patients and families critically review alternative and off-label treatments and highlight some of the lessons learned in this program over the past 7 years.
MND NSW vice patron, Paul Brock AM, died on 25 March 2016 from MND. The board, staff and members of MND NSW offer their condolences to Paul's family, friends and work colleagues at NSW Department of Education. Paul was on the board of MND NSW from 2002-2006. He accepted the role of vice patron of MND NSW in May 2007, and continued in that role until the present. Paul was an inspiring educator, speaker and writer, and he never tired of advocating for the rights of people with a disability, particularly those with MND. Additionally, he was committed to raising awareness about the need for research into MND.