Blog

From 8 to 10 December 2017 the 28th International Symposium on ALS/MND will be held in Boston, USA. The annual Symposium is the largest medical and scientific conference specific to MND/ALS and is the premier event in the MND research calendar for discussion on the latest advances in research and clinical management. Over 1,000 delegates will come from across the world to listen to over 100 talks and see around 450 posters. To see what will be discussed in these presentations, you can now download the full abstract book from the Taylor and Francis website (volume 18, S2 November 2017).

The MND Research Blog reports that Cytokinetics Inc. has announced in their official press release published on 21 November 2017, that they will not be continuing work on tirasemtiv after disappointing results in the latest Phase 3 clinical trial. The trial, known under the acronym ‘VITALITY-ALS’, tested whether the drug has a beneficial effect on the breathing function and muscle strength of people with MND.

2017 has seen many community events held across NSW and ACT. Special thanks must go to each and every organiser who gave so generously of their time to raise funds for MND NSW and awareness about MND. Thank you to the following supporters:

A big thank you for the generous support from LJ Hooker Cessnock who held a Charity Golf Day which raised $4,001.50 for MND NSW.  

We are very pleased to announce MND NSW was chosen as a recipient for the Westpac Foundation Community Grants. This grant funding was used to provide our recent Link & Learn 2 day residential program for Carers in Cowra. Thank you Westpac Foundation for supporting this important educational initiative for Carers.