Blog

The results are in and we are very excited to announce that over $68,500 has been raised at the Sydney Walk to d'Feet MND an amazing effort and a great way to finish off our Walks for the year. A special mention must go to "Team Kiz" who raised over $21,000 on their everyday hero page. For more photos and a video of the start visit our Facebook page  https://www.facebook.com/mndnsw. Thank you to everyone who supported this event. We look forward to seeing you again next year.

For over 35 years MND NSW has been and remains the only organisation supporting people with MND in NSW, providing equipment, support services, advocacy and education at no cost to the person with MND, their family and carers. All with only 15% recurrent government funding. MND NSW has also helped to provide over $25million in research to help find a cure. Until there is a cure there is care. We need your support to continue. Make your tax deductible donation online or phone 02 8877 0999.

Australia's MND March of Faces Banners are a photographic display of people with motor neurone disease. The banners are displayed at various MND awareness raising and remembrance events throughout the year. Our 20th banner in the MND March of Faces series will be displayed during MND Week 2018. If you have MND and would like to be included in the new banner, you need to complete a permission form and submit a photograph of yourself. Family members are also able to submit a photograph in remembrance of a person who has died from MND. More info here.

The MND NSW e-news November 2017 edition was emailed to members and subscribers on 27 October. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.

We are really happy to see some changes to be piloted by the NDIS in the coming months. We have been advocating hard for these! The proposed changes include no more phone planning, planners who have better understanding of the different types of disabilities and recognition that some groups of people might need extra help navigating the NDIS including people with more complex needs. More info here https://www.disabilityloop.org.au/news/pathway-changes.html