Researchers from King’s College London. Dr Bradley Smith and colleagues screened genetic data of an unusually high number of people of European origin finding that specific mutations in the ANXA11 gene are associated with around 1% of all familial ALS/MND and 1.7% of all sporadic ALS/MND cases. While this may seem like a small percentage, it is another great finding that can tell us more about the mechanisms of MND.

After a fairly early rise for breakfast and transit back to the airport to make the last of our flights into Cusco, we could do nothing but laugh when we got to the airport to find that our flight had just been delayed some two and a half hours! Many hours later, finally arriving at Cusco Airport, we were quite dazzled by the surrounding mountains; so large and yet seemingly so close! Transferred to our hotel with our local guide, Jaime, he managed to make seven very weary travellers laugh and smile all the drive long!

Today was a very big day of travel - almost 24 hours after departing Australia’s biggest city, we finally landed in Lima, Peru’s biggest city, home to almost 10 million people, or one third of the country’s entire population! Transferred to our hotel, we joined for a quick supper together before going on a bit of a group stroll around the streets. After three flights, one of them around 11 hours long, we were all itching for a bit of exercise!

Each year the first full week of May marks MND Week. From 7 to 13 May 2017 our focus is Life Measured in Moments #7DaysWithMND but we can’t do it without you. 

MND NSW assists people with MND live life to the fullest, not being dictated to by MND. Our equipment enables members to remain living at home, go on a holiday or attend a special event. We provide subsidies for members that reduce the ongoing cost of non-invasive ventilation so the task of breathing, that we all take for granted, is easier. We provide information for people newly diagnosed with MND when questions need to be answered. Our communication and computer access devices provide the means for people to stay connected when speech and arm movements are hard. MND NSW educational programs and support groups inform and link people with MND, their family and friends. We help make every moment count.    

Stay up to date with what is happening in MND Week by reading about the planned events here and by watching our Facebook page. And make sure you let us know of any events taking place in your area!

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