Blog

The MND NSW e-news October 2019 edition was emailed to members and subscribers on 4 October. You can read this edition here. Get the e-news delivered your inbox by subscribing to the MND NSW e-news.

Surf clubs and local councils across Australia are increasingly focusing on ways to improve every day inclusion and access to open up their beaches and clubhouses to everyone in their community.

Thank you to Stephanie Dickie who raised $615 at the Hillston Show. Stephanie and her miniature horses, Beau and Santos, gave carriage rides for a donation to MND NSW. We think they look great in their MND NSW bandanas!

Online and phone support for carers is currently available via the Carer Gateway ph. 1800 422 737 or www.carergateway.gov.au. The Australian Government recently announced in person services for carers will commence from April 2020. In person services will include carer support planning, coaching, peer support, counselling, carer directed packages and emergency respite care. These services will be provided by regional delivery partners including Carers NSW. For more information see Carers NSW http://www.carersnsw.org.au/advice/advocacy-rights-change/australian-government-initiatives/. 

Researchers at the University of Canberra are looking to explore the connection between patient-caregiving relationships, chronic/complex illnesses and caregiver wellbeing. They are seeking adults who provide informal care for another adult with a chronic or complex health condition, including motor neurone disease. The study involves participants completing an online survey, which should only take 10 minutes of your time. You can access the survey directly at https://canberrahealth.az1.qualtrics.com/jfe/form/SV_26otrv1xNmhhL6d or for more information contact PhD student, Kath Carleton This email address is being protected from spambots. You need JavaScript enabled to view it..  
This project has received approval from the University of Canberra’s Human Research Ethics Committee (HREC 0389).