MND NSW board member Anita Richter writes: My commitment to the MND community began in 1997. Through my work as a speech pathologist in both rehabilitation and palliative care settings I treated several people living with MND. I became concerned about the lack of real support services available as they and their loved ones strove to manage the challenges of this disease.

With a desire to make a difference I took the new position of Care Development Officer for MND NSW with the initial task of conducting a ‘Needs Assessment’ for People with MND.

MND Week has come and gone for another 12 months, but what an amazing Week it was. Thank you to all of our wonderful volunteers across NSW and the ACT who worked tirelessly to raise awareness and funds for motor neurone disease. We don’t have a confirmed total yet, with lots of workplace fundraising still to come in, although we do know we have raised over $28,000 already.

Australia's MND March of Faces Banners are a photographic display of people with motor neurone disease. The MND NSW March of Faces banners are displayed at various MND awareness raising and remembrance events throughout the year. Our MND March of Faces Banner 17 was displayed for the first time during MND Week 2016.

Over the last 12 months a few very good friends of David Pawson lost loved ones to MND... a disease he had never heard of. Some of the stories they shared with him moved David to the point of trying to figure out how he could 'make a difference'.  David took on a personal challenge, his first Ironman event, and raised funds for MND. On Sunday 1 May David and his two friends, Jason and Stephen competed in the Port Macquarie 70.3 Ironman and made it! Thanks David.

Two hundred members of the MND community in New South Wales came together on Saturday 30 April 2016 to attend the Association’s Day of Hope and Remembrance at Sydney Olympic Park. This day, held annually, marked the commencement of MND Week 2016.

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